Hi fellow sufferers .: Quick qhestion has anybody... - LUPUS UK

LUPUS UK

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Hi fellow sufferers .

barbdockeray profile image
7 Replies

Quick qhestion has anybody else felt like they have mild flu symptond but it doesnt get any worse just feel very fatiged and come out in brusies (again ) . My whole body aches and the burning headaches across my eyes just have to go to bed ...xx

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barbdockeray profile image
barbdockeray
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7 Replies
talula profile image
talula

O dear! Yes I feel like that a lot and unfortunately it is becoming more regular. I sometimes have to accept that on those days I don't get much done and have to rest, and yes even go to bed.

My advice? Rest when you feel you need to get on with your life when you can.

jellynpain profile image
jellynpain in reply totalula

I feel like this much of the time. Noticed a period of easy bruising (beyond normal) and since discovered my white blood cell count had suddenly dropped around that time... don't know if relevant.

I am due to see Lupus Clinic in a few weeks for diagnose/or not.

X

julieju profile image
julieju in reply totalula

I feel like this. I have stayed in bed all day. I am a Carer for my Dad who is 78 & has Parkinsons. I am 50 & have Haemochromatosis. I don't drive but between me & my sister we have to manage. It's just getting worse with my Dad. Sis & I are fraying away with it!

osisteff profile image
osisteff

That is exactly how I am feeling today. Headache, painful joints and tired beyond belief! After 5 minutes of doing something must lay down for half an hour. Feeling frustrated. Xxx

Tammie profile image
Tammie

Sounds like a flare

onamission profile image
onamission

I get this I come out in purple bruises they are not painful to touch but look very unsightly I have been tested for Lupus and when I saw a consultant he said it was because I took steroids I have COPD, its a pity he didn't talk to me before discharging me I would of told him this started before I was taking steroids

abby1649 profile image
abby1649

The flu like symptoms do come and go with me. Haven't figured out the common denominator yet so I can better with it. When I wake up in the morning I know if its going to be a good day pr a bad one. Like Talula says listen to your body - Rest when you need too, live your life when you can.

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