12 weeks self-isolation for Lupus sufferers - LUPUS UK

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12 weeks self-isolation for Lupus sufferers

fluffyk30 profile image
9 Replies

Hi everyone, I have SLE amongst other things and just need to know do I need to self isolate for 12 weeks even though I have no symptoms? I know I'm a bit of a dumb blond but I'm totally confused by all the information I'm reading. Please can someone help!!! Thank you. Hope everyone's ok out there! Xxx 😘😘😘

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fluffyk30
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9 Replies
Benne09 profile image
Benne09

Hi see Paul’s (Administrator) post, a few below yours. I know right v confusing!

fluffyk30 profile image
fluffyk30 in reply toBenne09

Thank you xxx

heatherevans28 profile image
heatherevans28

The press release was actually a lot clearer than the media reports (for once). Anyone over 70, pregnant, or who would normally be entitled to the flu vaccine needs to isolate for 12 weeks and be shielded.

Lupus sufferers and people on immunosuppressant medication are both entitled to the flu vaccine so we fall under one (if not both) of these categories.

Hope this helps x

fluffyk30 profile image
fluffyk30 in reply toheatherevans28

Thank you xxx

Hi fluffyk30, the most annoying thing about all this is that no one wants to take responsibility and just say we demand you self isolate. I have SLE, APS and now on Peritoneal Dialysis due to my kidneys taking a battering from the lupus and my boss has said that he's concerned for me and I've to definitely take the rest of the week off and we'll take it from there, the nurses have advised me to take it off too but as it's not compulsory yet it's my decision. The government may have made all this money available for people and businesses but they lack someone to take a stand and just make a decision and enforce it. This is worrying times for all of us.

fluffyk30 profile image
fluffyk30 in reply to

Aww bless you, you really need to take care of yourself. I do get the feeling that our Tory government are more concerned with the money they will lose than the amount of people, a controversial statement I know!! But they just can't seem to make a decision and I believe money is at the root of it. We are fortunate to have the lovely people at Lupus UK to offer us support and guidance as well as fellow Lupus sufferers though + I think as a community we can help each other. I'm not normally one to waffle about politics or anything like that so sorry to go on but it's quite personal to us I feel. Hope you stay safe and well. Xxxxx

in reply tofluffyk30

No need to apologise, it's good to have a wee rant now and again. This lupus community is good and it has helped me greatly. I feel we have other people that although they have different symptons we are all in the same boat. Look after yourself.

Krazykat26 profile image
Krazykat26 in reply to

Yep..same boat with different but kinda similar paddles!! Keep rowing people!! 🤗🤗🤗Xx

Fizbrooks profile image
Fizbrooks

We are all in this together stay safe

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