Lupus nephritis? Wish me luck..

[loopylewis]

Hi my symptoms started in winter numb fingers toes.then red blotches on fingers and toes then swelling. Then facial swelling.then flares . fever tiredness nausea. Went to doctors numerous times. They only took me seriously when I had a major discoid flare over body. Dermatologist was good but I insisted on being tested for lupus.so I had my first urine test after 6 months then they finally realised maybe she's right. I was rushed in for urgent kidney biopsy. Get my results Thursday. Wish me luck . And love to you all x

[overnighthearingloss]

I hope all goes ok.

There may be extra things you can do to improve outcomes however by paying close attention to dietary factors.

I had a renal crisis and got very close to dialysis. In fact i went past the stage that many first start dialysis. I have since managed to sort of stabilise things by trying for a much more alkaline diet, drinking loads of water to constantly help the poorly functioning kidneys to flush toxins in the blood, and trying as far as possible to stay away from inflammatory foods.

I personally believe that this approach has helped at least as much and maybe more than any additional medical interventions.

I believe that outcomes may be less good if you just hand over control to the medics entirely. You can do a lot of good yourself to help the situation.

[ripon1756 in reply to overnighthearingloss]

Yes I quite agree. The only people who are benefiting from prescription medications are the powerful Pharmaceutical Companies.

[overnighthearingloss]

I forgot to mention. If you drink fizzy drinks now may be the time to wean yourself off them.

[Ruth_lderry]

Hi once I was told I had lupus then they discovered my kidneys weren't good either I got to stage 4 off Kidney disease. Offered me the cancer drug to take but I opted no 2 that simple reason id never b able to have kids (am only 26 and still want to have that part of my life) so I went 4 plan B obvs more meds of course but thankfully this treatment has been going well 4 me no major mess ups or nothing. It's very good wen u get a very good renal doc mine is just the best. Fingers crossed u get answers quick enough about this. Even having the worry on u is tough.

Thinking on u and let us no how u get on.

Ruth xx

[loopylewis]

So warming to know there's people out there who know how it feels.great that you both seem to have it under control. Would just like to say if any gp reads these posts if a patient comes in suspecting lupus at least give them a urine test at beginning. It costs pennies and could potentially help them before lupus starts ravishing their kidneys. I'll post tomorrow night to give my outcome of biopsy. Much love and support to you all.

[Cann]

I agree with the others. I also keep high protein to a minimum or my body does by muscle testing. I need some high protein and only eat organic free range eggs once a week and a little fish from where I know the source. The trouble is with high protein these days is all the rubbish the animals are fed and the hormones and antibiotics. My kidneys just can't cope with too much high protein. I get most protein from beans. I trust muscle testing; it is brilliant as I wouldn't know what to eat if it wasn't for that - I owe my life to the therapist who taught me how to do it.

Much of the conventional system is trial and error; they don't know your body like you do. Like ripon said it's all about the big money for the pharm. companies. I learnt that in 2000 when I almost died through drugs given to me in hospital. It compromised my health, sadly, but at least I learnt a lesson!