weather: hi every one just wondering if any one... - LUPUS UK

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steph1 profile image
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hi every one just wondering if any one feels worse with pain with this cold damp weather

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steph1
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9 Replies
tremarel profile image
tremarel

I certainly do ! I have job to walk. My hips are so bad. Everything is just hurting. Even my bed is hurting my body. I have always found the weather makes the fibromyalgia bad . The fibromyalgia comes along with the lupus . Nothing seems to ease it.

grannyjogger profile image
grannyjogger

That's an easy one for me to answer....yes!!! My joints hurt more, my digestive system is sluggish and I'm constantly tired. A simple cold (if there's any such thing for someone with autoimmune disease) knocks me for six. Never mind, soon be Christmas.

Its something to do with air pressure

JoJo0405 profile image
JoJo0405

Ohhh yes. I have Hughes Syndrome and have recently been diagnosed with Musculoskeletal Disorder so every muscle, joint and bones hurt like hell. My fingers seize up and my cold is more like flu and to top it of I can't get the flu jag this year because I'm on Clexane (which I've been on for 12 yrs)

Anyway on the bright side my visions improved......lol

Cann profile image
Cann

Yes, I certainly do. When the weather changed a few weeks ago, it was like I was hit with a brick! It takes time for my body to adjust or something. Also damp weather can affect those who may have a fungal problem and I did, which was one severe problem that started my symptoms and the air pressure gives me headaches and blurred vision. I need to keep hydrated. I find damp conditions affects my breathing and lungs, too. However, I still try to get out in the weather to get the vit. D naturally.

I don't do well on supplements either. Exercise, too, helps the pain in the head, joints, hips, knees, etc. and the lungs because I breathe deeper, which although can hurt and is scary to start with, it does help the pain to go eventually. Adequate rest, of course, is also helpful. I find it is all about balancing the body. I also cook with herbs and these help with the symptoms and pain. Exercise helps the digestive system to work more efficiently, too, which is another problem for us all.

onamission profile image
onamission

I do suffer more in winter with painful joints hip and back but as I have COPD I find it better for breathing can't win really

pigsty profile image
pigsty

Whether it is hot or cold the weather affects my body....

This damp weather makes my joints ache...my hips become so tender l really find walking any distance difficult..adds to the discussion on what 's the weather like today....roll on spring

hi im the same i have had 3 weeks of not wanting to put weight on my hips tender elbows and tender feet

but ive not got lupus according to 2 reumatologists these symtoms come and go but usually lucky to get a week free and then ive usually got back pain its all weird

waling just makes it all worse .

i cycle on e bike to keep my joints moving but this has a bad effect as well my knees ache as well and i cant sleep at night for pain in right knee especially a soon as i lie down it starts . groin tendons / muscles ache and spasm at night legs feel like they are stuck in shape that i wake p from and have to stretch them painfully out . getting out of the car even after a short journey is excruitiating .

i lost loads of weight but it didnt make any difference infact think hip back pain worse .

ive got damaged discs dont know what pain is what . had a diagnosis of fybromyalgia and early onset arthitis . i dont bother going to doctor anymore as ive been diagnosed and that seems to that .

caninecrazy profile image
caninecrazy

hello steph1,

it may be strange thing to say as the cold weather increases my pain but I prefer the cooler seasons as the warmer ones I struggle to breathe and constantly have blue tinged lips and my fatigue is million times worse too x

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