Need some advice ... Mouth sores, nosebleeds, fas... - LUPUS UK

LUPUS UK

32,210 members28,555 posts

Need some advice ... Mouth sores, nosebleeds, fast heart rate, throat and eyes swollen and itchy ...

Elle-26 profile image
8 Replies

Ive been diagnosed with Discoid Lupus with Alopecia last year and Sicca Syndrome. The Rhuma also found Ive got Arthritis, im sure it is Osteo and also Fibromyalgia ... Now since the hot weather my heart rate is continuously fast, I can hardly breathe and have nose bleeds, mouth sores, migraines, low fever, and my eyes and throat feel swollen and itchy.

Ive seen the Derma since having heat rashes and terrible prickly heat and now am also taking Telfast 2x a day .... Are all these symptoms associated with Lupus? ... I am so fed up seeing the Doctor and I see my Rhuma this month ... Should I tell him about all this? Thank you for reading this .. Xxx

Written by
Elle-26 profile image
Elle-26
To view profiles and participate in discussions please or .
Read more about...
8 Replies
MaryF profile image
MaryF

The Fibro, in view of your other conditions is likely to be a Thyroid issue, which can cause heart problems, either slow or fast. Unfortunately clinicians rely to heavily on the Thyroid Tests currently available which are notoriously wrong! Insist on another test for this it is important, and also go to your GP. Also get them to test you for Hughes Syndrome while you are there just to rule it out. MaryF

Elle-26 profile image
Elle-26 in reply toMaryF

Thank you Mary, the Dr did a Thyroid test but came back negative ... The Dr knows of my heart rate as it was picked up on a 24 hour ECG ... Just seems a battle to get diagnosed when you know you have added symptoms ... -x-

MaryF profile image
MaryF in reply toElle-26

Yes my tests for Thyroid were completely negative with the standard useless tests, but it showed up in others and also a more intelligent physician noticed the sluggish reflexes in my feet. Thyroid UK have a good forum on here. MaryF

Elle-26 profile image
Elle-26 in reply toMaryF

Ah, is that a sign then? My Neurologist found no plantar reflexes in my feet ... I will have a look at Thyroid UK ... My doctor keeps suspecting my Thyroid yet test comes back negative :/ -x- Thanks again MaryF -x-

Purpletop profile image
Purpletop in reply toMaryF

Mary, do you also get pain in your feet? I'm trying to get to the bottom (no pun intended) of the pain I have with my under feet, rheumatologist hasn't got a clue.

MaryF profile image
MaryF in reply toPurpletop

I do get agonizing feet at times, but I do also have psoriatic arthropathy, sjogrens and hughes also, but this happens when I have a flare of some sort, they don't hurt all the time. There is something called soft tissue rheumatic syndrome. I don't have it but have heard of it. clevelandclinicmeded.com/me...

MaryFx

Purpletop profile image
Purpletop in reply toMaryF

Thank you for the link, v interesting, though not dealing with feet. I used to have so e degree of pain in my arches but lately the pain level has increased. I might be in a flare because I also have abdo pains, and I haven't had those for a long time. But no other symptoms, so I don't know.

We don't get even a day free of symptoms or worry :(

misty14 profile image
misty14

Hi Elle-26

So sorry to read of your worrying health problems. You must tell your Rheumy Consultant about all your symptoms when you see him this month. Lupus can affect our bodies everywhere, I have inflammation of the lining of the heart and one of the symptoms is a fast heart rate with pain that's treated with steroids and anti- inflammatories. Are you on Lupus treatment?. Let us know how you get on at the appointment and good luckX

Not what you're looking for?

You may also like...

Fast heart rate(tachycardia) advice

Hello everyone I am having problems with tachycardia giving me dizziness, shortness of breath...
misty14 profile image

Pain under right Rib area? Gallbladder?

Ive been diagnosed with Discoid Lupus Erythematosus , Fibromyalgia, Sicca Syndrome, Arthritis,...
Elle-26 profile image

Itchy, burning skin and mouth, swollen lip!

Hi! Does anyone get these crazy symptoms? My skin feels like sun burn and my mouth is burning and...
honey67 profile image

lupus and looking like you have aged quickly?

OK.. Have any of you older ladies, new to lupus etc...Do you think your looks have aged faster all...
dgleds profile image

Sunny weather and flares, help!

Am I the only one that flares up in this heat like there is no tomorrow!!! Cold weather not many...

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.