The irony of it...: I have a diagnosis of MCTD with... - LUPUS UK

LUPUS UK

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The irony of it...

5 Replies

I have a diagnosis of MCTD with my symptoms leaning most obviously towards Limited Scleroderma. All Winter I have suffered the ill effects of cold, damp weather, persevering with my outdoors jogging nonetheless(just wore various layers of clothing and gloves).

I'm loving the warm weather but I'm now waiting to see what goodies this lovely sunny weather has in store. I'm determined to make the most of the extra daylight and heat. I'm just wary of what unusual ways my body will find to react. (Last year it was horrendous mouth ulcers and a mild rash on my face - before I even realised what was going on.)

Some people are just never happy!

5 Replies
misty14 profile image
misty14

Hi Shazzer

I'd say be careful in the sun to avoid getting ill ie cover up and wear high factor sunscreen and try to avoid the hottest part of the day . Enjoy the sun the rest of the time to store Vit D for the winter!.X

in reply tomisty14

Thanks. I have a very wide brimmed hat and a good SPF. We definitely need our vit D replenished in this part of the world! I have my stash of novels to keep me occupied and a training programme to get me ready for a half marathon... Seemed like a great idea at the time!

Foss profile image
Foss in reply to

Hi Shazzer, good for you I'm full of admiration. I've just started to try to walk a little further each day to build up some stamina so jogging is just wonderful, what's your secret, apart from determination?

in reply toFoss

Hi Foss,

Well done for getting out there walking! The biggest battle I faced was in my head when I started exercising. Keep at it. I also add a little bit on or push myself a little more each time I go out.

I have a few things in my favour. So far my disease has been mild. I don't want to tempt fate but I have had no real aches or pains.

I started exercising before I got any diagnosis of MCTD. In fact I started exercising after a possible misdiagnosis (PCOS- I was lethargic , getting headaches etc) and was told to lose weight and change my lifestyle. Funnily enough I started to feel better as I was losing weight and feeling more energetic.

Keep at the walking. Exercise does us a lot of good on so many levels!

Foss profile image
Foss in reply to

Hello again

Thanks, I will keep at it and good luck with the training for the half marathon.

Foss

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