Does Lupus cause dry mouth at night? Been having extremely dry mouth thru the night.

[Karmin]

[Alex97]

I am diagnosed with UCTD. I have recently started geting a really dry mouth day and night. I take amtriptyline for help with sleeping so I put the dry mouth down to this. maybe its not the medication? there is no way I can go back to GP with yet another ailment... he thinks all my symptoms are attributed to getting old (I m 47!)

[Karmin in reply to Alex97]

Thank you Krisx67:

At first my Dr thought I had UCTD but then he said SLE is crazy because really my only complaints with that is brittle thinning hair and lately Iam very tired..but I excercise 6 times a week. Haven't taking meds for a month..was on Hdroxy but my eyes were being demaged...suppose to start on MtX but side effects sound terrible, soon i have to start treatment..and just in the last 3 weeks noticed dry mouth at night feels awful..drink a lot of water during the day..

Old at 47? You are young. I wish I was that age ..Iam 56 had been healthy all my life till I got this..but come on Kris let's kick Lupus butt. good luck with everything!

[Alex97 in reply to Karmin]

yes gp made my day saying I had symptoms of old age... I was only 41 when this started. rheumatologist is convinced I have lupus but won t diagnose this as bloods don t agree! I have constipation, terrible chest pains- indigestion? hair loss, joint pain, raynaurds, cold hives and recently diagnosed nail psoriasis. I was on hydroxychloroquine but had reaction resulting in steven Johnson syndrome so not on anything now. goodness knows whay I ll be like when I am actually old! I work full time which is a struggle but atm just getting on with things. good luck with everything.

[Karmin in reply to Alex97]

Oh Kris Iam sorry you are having such a hard time..unfortunately Drs. Can be insensitive at times..bad enough to be dealing with all those issues you need encouragement not silly comments. That is odd I thought in order to diagnose SLE certain blood test had to be positive like ANA and others, in the otherhand they say is hard to diagnose b/c it can be tricky similar symptoms to other inmune disorders, what is nail Psoriasis? A few of my fingernails look white and little detached from the bed..both hands pinky and ring finger...scary it just happened in the last 2 weeks..have appt at end of month..it's probably disease acting up b/c I haven't taken medication in a month.

Thanks Kris for sharing info..hope you get to feel better and that we get a med that works without horrible side effects..I don't want to take steroids. Best of luck to you!

[Alex97 in reply to Karmin]

I ve only ever had ANA positive once and ever time I go to rheumatologist I ve got a new symptom. he is convinced ny blood tests will come back positive!. went to GP about nails, she said i had nail fungus without really looking but dermatologist said it was nail psoriasis. skin growing thick under nail and pushing nail away frim nail bed, also blood splinters under nail. not painful, just looks awful. take care and I hope you feel better soon x

[Karmin in reply to Alex97]

Thanks Krisx67!

Hope things get better for you too. It really helps to be in this group you hear things that we aren't aware of..I appreciate your imput..take care and stay positive in spite of all these awful health issues....where do you live? I live in the US. Take care! Feel better..

[Alex97 in reply to Karmin]

I m so glad I found this site. whenever I get something new going on someone on here has same and I don t feel like the hypochondriac mr GP thinks I am. my sister is on mtX for RA and is fine, just has regular blood tests to check kidneys. she also imjects herself im the stomach once a week but I forget what this is called but she is like a new woman. I am from UK. hope new meds work well for you and you are soon feeling tip top!. take care

[Karmin in reply to Alex97]

Thank you again Chris! I will be posting anything that comes up...Iam sure you aren't a hypochondriac unfortunately for some doctors we are just like a number...they write prescription and don't really care how we really feel...take care!

[Alessa87 in reply to Alex97]

I am prey you're having so many issues; I am 29 and most likely going to be diagnosed with UCTD, once I rule out infections from a tick bite in 2004, and general infections before taking any immune suppression medicinale.

As for the dry mouth, I have taken amtriptyline years ago, also for sleep related issues; however, I stopped taking it because the dry and soreness of my mouth and throughly was getting worst that my insomnia!

I hope this information helps, personally it was one of the effects of the medication for me at the time. However, I am not on that medication now or have been for a long time, but have recently been waking up with a similar problem. The mouth dyness reduces throughout the day, but nonetheless, my mouth is drier than usual.

Hope you find a solution soon, I know it's driving me stir crazy!

Wishing you luck!

[Bebe76]

I have SLE and Sjogrens' as well, which causes dry eyes, nose, mouth and throat, especially overnight.

[Karmin in reply to Bebe76]

Thanks Bebe 76:

I have heard of Sjogren's ..hope Iam not getting touch of that, being that I was diagnosed with SLE. This just started happening like 3 weeks ago..but is only at night no trouble any other time. Good luck to you!

[Bebe76 in reply to Karmin]

Be sure to mention it to your rheumatologist next time if it continues to be a problem. It may very well be the meds, but there are blood markers you can be tested for that may indicate Sjogrens. Also, having a dry mouth may lead to increased dental decay, so watch for that. Before I was diagnosed I was suddenly getting cavities and I didn't know why!

[Karmin in reply to Bebe76]

Oh my there are so many issues we have to watch isn't there? It is scary then having one thing brings something else along.

Be careful and take care!