We need 500 people with SLE to finish this survey for an important research project. Please take the time to complete it. You can save your progress and complete it in sessions if you're not able to do it in one go. Thank you.
LUPUS UK has teamed up with the International Foundation for Autoimmune Arthritis, Sjögren's Syndrome Foundation, Spondylitis Association of America, and the International Still's Disease Foundation to lead a patient-centered research study involving the 6 core Autoimmune Arthritis diseases: RA, PsA, AS, Sjogren's, Adult Onset Still's Disease, SLE.
The research study will analyse patient-reported early symptoms of these 6 diseases and the results will provide information to then develop new "Early Symptom Patient Models" (ESPM) for both the individual diseases and the group as a whole. In addition, those patients who started with Undifferentiated Connective Tissue Disease/Spondyloarthropathy who later progressed to a diagnosis of RA, PsA, AS, Sjogren's, Adult Onset Still's Disease or SLE will be noted, which can be used to prove the need for treatment in the Undifferentiated phase.
If you are diagnosed with one (or more) of these diseases, were diagnosed after 1994, and had adult onset, please consider donating 30-40 minutes of your time to take the questionnaire portion of this research study:
fluidsurveys.com/s/early-sy...
Please SHARE with any patient you know who meets these qualifications and who you think wants to make a difference in the rheumatology community!
Radio interview on lupus, the diagnostic difficulties and challenges of the pandemic - listen to Coco and Dr Chris!
