I'm still coming to terms over this diagnoses, so hard when we are walking into summer . I have brought two wide brimmed hats, but it is very hard to find clothes in the normal stores which will protect me from the sun..... I wear factor 50+ sun cream, although I'm not that good at remembering to apply for be I go out for the day. The last couple of days at work I have worn sandles, but I have now noticed I have a couple of new spots which have appeared on my feet and toes, so I will have to start the steroid cream which means I will have to cover up more or stay indoors ,which is not always possible in my line of work. I also have other symptoms which worry me. Headaches which affects my eye sight and make me feel quite ill, twice this has happened in 6 weeks. I have taken my blood pressure when this happens but my BP is normal! Temperature/fever, this happens quite often even on chilly days. My eyes can be very dry even on days when I have drank loads of fluids. Joint ache is becoming more of a problem, I used to get a condition called viral arthritis maybe once or twice a year if I was unlucky (for the past 15 years), now I find my joint ; wrists, fingers, ankles, feet, shoulders, knees and sometimes my neck are always aching. Last night the skin on the palm of my hands felt as if it was burning, I have noticed my head and my face strings if I have been in places where they have fluorescent light. I am tired more but then I get up for work earlier as I have to catch a train, after a couple of days of this I find by 6 pm I am ready for bed. Any advice is gratefully received... Thank you Julie
Last edited by juliekendell
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