OK, so lupus suspected and a +ve ANA last summer. APS identified at same time and treatment started for that last November. Kidneys are unhappy and I seem to be getting more unwell as the months pass. A biopsy may be required as I am passing blood rather than urine. Raynauds, osteoarthritis and possible LN. And now I seem to be being told I have vasculitis. From what I can see this is a really uncommon thing that can go along with SLE, which I am still waiting for treatment (or even acknowledgement that I have it!).
Why are the consultants insisting on piling diagnosies on me but offering no treatments, and completely ignoring what seems to me to be the primary cause of my illnesses? I have 8 of the 11 criteria, and dont know what to do to get looked after properly, which is completely depressing me.
Sorry to be self pitying. From what I can make out, no one wants to take responsibility for my overall care. Also for these conditions the treatments seem to be broadly the same. I no longer care what is making me ill, I just need to stop deteriorating.