has anyone applied for personal independent payme... - LUPUS UK

LUPUS UK

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has anyone applied for personal independent payment and were accepted I have a face to face interview tomorrow and don't no what to expect

debby197 profile image
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debby197
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20 Replies
tremarel profile image
tremarel

No I haven't as yet, still on DLA. I know everyone has to do the changeover soon. Were you on DLA or you just starting a claim on PIP ? All the very best for tomorrow don't let it worry too much I know it's an ordeal. Please let me know how you get on.

God Bless Hayley x

debby197 profile image
debby197

I was turn down last year for DLA welfare rights have done my claim this time x

Slowmo profile image
Slowmo

Hi there, I supported a family member through the review of DLA which is now being changed to PIP - what was really important in this was to emphasise not only your illness but VERY important to explain to the assessor/s how it affects you. I.e. I used to shop and cook - now because of mobility I'm unable to do so.

I believe the focus is largely on what you can and cannot do as a direct result of your illness. For me a large part of being unwell is fatigue (like everyone else I guess) but to explain that even if you are able to undertake an activity the result would be total exhaustion and the need to rest, also emphasising that you wouldn't be able to repeat the activity within a given time. And of course, the unpredictability of SLE, in that it's nigh on impossible to plan a routine/structured day due to not knowing when you'll be well enough.

Sorry I can't give more info on the actual process, but try not to get too worked up over it, and just be honest, tell them how being ill affects you and don't be proud.

I'll never forget my late father's response when being assessed at home following a stroke, he was asked could he walk upstairs - he frog marched himself upstairs to show them he was capable - but never told them that he was in agony as a result and was actually done in for a day or two afterwards, lol, bless him.

All the best.

debby197 profile image
debby197

thanx that is a help I always worry as I look fine but in constant pain and people always assume if u look fine then u must be but with sle u look OK but every joint hurts x

misty14 profile image
misty14

Hi Debby

Good luck for your face to face interview. Let us know how it went. Hugs X

I had mine end of January, I to date waiting for the outcome! I had a lovely lady I was asked questions about mediation how it affected me. Day to day life how I get up get down stairs getting in and out of chairs watching telly how long for, friends who helps, walking around the house ect. Bath shower activities, Ask alot re cooking who cooks, food being cut up! Holidays do u go if u di how do you manage ect . Hope thus helps. Fingers crossed for you. Fingers crossed for me . Let me know how it went for you. Good luck xx

tinkey profile image
tinkey

Good luck today! I had mine mid December and was awarded PIP 3 weeks later. They immediately put the back pay into my bank and I was able to buy a mobility scooter, which has changed my life. Be strong and answer honestly, I was in tears most of the time throughout mine as I let the emotion and frustrations out about Lupus. Let us know how it goes x

debby197 profile image
debby197 in reply totinkey

Hiya thanx for your reply can I ask you were u given standered or the enhanced rate I still haven't had my notice as yet

debby197 profile image
debby197

hi my face to face interview went well she even suggested other equipment I should get from my osculation therapist so I'm hopeful x

Kedaco profile image
Kedaco

I had my Incapacity benefit stopped 7 months ago and have my appeal next month I was told if I supplied a medical note from my doctor I would be paid until the appeal I sent two notes each for one month but I still didn't get and money so I had to go to the Job center and sign on and they have told me if I don't look for work they will stop my money and now have put me on a course I have a flare-up every month now that last about 7-10 days must be the stress but what can you do if no one understands or be leaves you pain is not visible and I wasn't in a flare-up when I had my assessment one of my Doctors told me that a man in my condition shouldn't be looking for work but couldn't comment on the assessment sigh (;-( don't like to admit it but I always end up crying halfway through and I have tried the happy pills but they don't work for me just have bad side affects which adds to the misery sorry I have gone off subject here.

debby197 profile image
debby197

ah bless hope u appeal goes in u favour I have lots flare up I'm always in tears if u ever just won't chat inbox me x

DebbieD profile image
DebbieD

Hi I had my face to face assesment in february and got my reply yesterday my claim was succesful i have been given standard rate for both daily living and mobility it has been backdated from september last year when I first applied for it.!!!

debby197 profile image
debby197 in reply toDebbieD

Is your mobility poor as my doc said he would expect me to get enhanced as I have thinning of the cartlige in my knees and extra bone growth with hardening making it very painful when I walk and they won't do my knee replacement for at least another 10 yes because of my age I also had mine in Feb but haven't heard yet

DebbieD profile image
DebbieD in reply todebby197

Hi debby197 my mobility not great I struggle to walk any distance especially uphill as my leg muscle ache and my chest grts really tight leaving me breathless.your mobility sounds a lot worse than mine hope you get the enhanced rate.hope you get s decision soon let us know when you do,

Slowmo profile image
Slowmo

Dear debbieD, so glad you were awarded what you are rightly entitled to and deserve. I only hope the DWP continue to award those with SLE who are unable to work for valid reasons and begin to recognise the impact SLE has on our lives, and accept that we do want to work but can't. I for one would love to go back to my career, or even change careers to do anything that meant I wasn't stuck at home being unwell.

All the best, I'm really pleased for you.

DebbieD profile image
DebbieD in reply toSlowmo

Thankyou slowmo.i am still able to work at the moment as I only work part time.

debby197 profile image
debby197

Well over a month still waiting my decision on my pip taking ages

wotshernameagain profile image
wotshernameagain in reply todebby197

It took about 4 months for my decision I would suggest you chase them. I set myself a reminder in my phone to call every week. I will admit atos took long to send the info over, once DWP received it they made the decision with in a couple weeks

debby197 profile image
debby197

Rang Atos today they said still doing my report but the woman I spoke to has taken my no as said she will check every morn and once completed and sent back to DWP she will ring me

debby197 profile image
debby197

At last had a decision after taking 30 week due to Atos taking forever well awarded enhanced living component but nothing for mobility

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