Anyone else suffer from rib pain? I get it quite ... - LUPUS UK

LUPUS UK

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Anyone else suffer from rib pain? I get it quite alot recently and I'm starting to worry about it :/ its a sharp pain in my right side

18 Replies

Usualy accompanied by my right shoulder blade hurting and then it spreads to my entire upper back and right round my ribs

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18 Replies
Louise4dogs profile image
Louise4dogs

Hey Loubielou23

I'm still awaiting positive diagnosis, infact, I'm going to see my Consultant tomorrow for more answers to my questions. I am currently having a flare, the worst I've had since I first became poorly 5 years ago. My symptoms are the usual, joint pain, muscle pain, fatigue, depression, mouth/nose uclers, dry eyes and mouth, but this time I have had terrible pain around my rib area and in my back. I feel like I have been stabbed! Also my heart rate is racing constantly and I have neck, collar bone and shoulder pain. I'm not sure if this is another step forward to living with Lupus but it's horrible!

willowwag profile image
willowwag

Hi both, i just wanted to let you know i also have lupus sle, i had been suffering for over ten years, because mine started as under rib pain, shoulder blade pain etc i had a scan they found really bad gallstones and my gallblader was removed 2 months after removal the pain was back and worse than ever, many years have passed and i finally know what the problem is, i have hypermobility, pars defect, raynards, lupus sle, my consultant has also confirmed serositus, this explains my pain around my rigt rib cage, up my back and arm, i get a crushing inflamming pain which is worse than childbirth, seositus is where your serouse tissue becomes inflamed, this inflames the lungs, heart and abdomen, its a terrible pain really its is, this my be worth you looking into x keep strong x

Louise4dogs profile image
Louise4dogs

Hey Willowwag,

Thank you for your reply. I'm going to put Serositus to my consultant tomorrow. The symptoms are exactly the same. It is very painful. Do you get the pain during a flare or day to day?

That does sound very much like what I'm experiencing! Google here i come ^.^ got an appointment with my rheumatologist in December so ill flag it up with her, iv had loads of scans on my organs and chest so i know its nothing too sinister, atleast I'm hoping it isn't. Thanks for the replies x

donna profile image
donna

Hi loubielou23, I have lupus SLE,Hughes ,Sjogrens,Hashi's,fibromyalgia,poss Behcets..! I also suffer from rib pain etc which sounds similar to yours ..my diagnoses is Costrochronditis...google that!. I went to the A@E on a number of times with chest pain ribs etc..once they realise after blood tests and ECG that I wasn't having a heart problems I was discharged ...still in pain.. My GP then Rheumy eventually diagnosed me ..Really painful..comes under connective tissue disease...! Good luck on your hospital visit December x

Carolha profile image
Carolha in reply to donna

My doctor said I had chostochondritis and it turned out to be gallstones!

I didn't realise that so many people have the same symptom! Thought i was going mad haha. Iv just been lumped into the mixed connective tissue category despite having 90% of the symptoms of lupus, actually diagnosed with rheumatoid arthritis, Raynauds, joint hyper mobility and Hughes. I'm hoping it will all be resolved. Don't know if i should go to my doctors before my appointment on the 13th of dec? I'm getting married on the 7th and don't fancy having lots of tests in the running weeks to the big day, do you all think it could wait a few weeks? X

ftjftj63 profile image
ftjftj63

Hi there, I find it very comforting to hear many suffer from the same :) I get pain around my ribs shoulder and back, I had shingles a couple of years ago and kidney stones, been through the usual tests as above and all my Rheumy says it comes with Lupus SLE, I have also found that if I overdo it the pain does become more intens, I just celebrated my 50 and had a big bash, before this a bit too much stressed. I am sure youre GP will be able to help you out if he talks to youre Rheumy you dont want to be in pain or all drugged up on youre big day, maybe he can get you in for a quick ultrasound of Gallbladder (have to keep of all fatty food if they find any stones though ) Good luck :o))))

I think I'm just going to wait till after the big day unless it gets any worse, it comes and goes anyway so I'm hoping it will ease off. My gp is really hard to see and generally not very helpful so i tend to hold off until i really need to go :) x

willowwag profile image
willowwag

Hi all, louise, i get my pain niggling somedays like a ache in my kidneys up my back etc, all of a sudden its gives me a flash of heat like a hot flush then my insides feel like they are expanding from inside out, this causes intense pain makes it unable to move, it cripples my cant lay down, cant stand up, im like rolling around doubled up, ive been told by my rhuemy she doent know how i hope with the pain, shes seen me full blown in her outpatient room bless, i think ive been in a constant flare for years ive never had more than a 2week break from it in 10 years i can have 5 episodes a week, 2 a day, but then nothing for a week im tracking, the days im in work to pain days and am and pm eposodes it helps my rhuemy understand my daily life. The expanding (crushing pain) is the worst pain i have ever felt, its also caused a hernia due to the pressure in my abdomen.......all this and im struggling to continue to work,,thinking of applying for pip x nope this helps, sometimes this can been first thought to be ibs, gallstones and other gi problems, but with a possitive ana result and the scale ov it, mri scan and tube down throat, gallblader removec and all my other symtoms it all slotted into place after all the years im starting steriod injection in dec 6th xx watch this space hay hun x

Blooming hell! Mine isn't that bad thank god that must be awful! Mine just feels like a broken rib so its nothing compared to you. I hope they sort you out soon love. X

willowwag profile image
willowwag

Hi lou, mine never used to be this bad, ten years ago it was just starting of the ore it happens the worse it got over the years, hope yor feeling better today, remember your never alone with your lupus xx this site is great xx

That really sucks :/ well i hope the docs do something for you soon. I'm just going to hope it stays at a tollerable level until after i get married haha don't fancy being in agony that day or high as a kite :P x

donna profile image
donna

Good luck for the future X wishing you improved health and much happiness xx Happy Wedding day!!,,

Pace your self!, my son got married in July ..Friday to Sunday doo which was lovely but I was knackered! You can't leave your sons wedding to go to bed early!! I was in bed for the next week! Enjoy your day xx

in reply to donna

Thank you ^.^ xx

Belee profile image
Belee

Hi loubielou23,

I also get recurring pain in my rib area and also my chest. GP diagnosed it as costochondritis. Very painful so I empathise with you. Hope you get it sorted soon. Good luck xxx

Thanks love i hope so too :) xx

Hi guys just wanted to let you know I'm seeing my gp in an hour, the pain got so bad yesterday that i couldn't move, didn't sleep last night either. So I'm off in search of some pain relief. Trouble is that most of them keep me awake at night! I suppose the funny conversations i have with my friends the next day about things iv pondered at 5am make for a interesting day but wether zebras are black with white stripes or white with black stripes isn't high on the top of my list :P (they are white btw lol) so yh ill let everyone know what they say, if they do anything. X

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