Behcets and lupus

[donna]

Hello does anyone have a diagnoses of Behchets diesease to add to their Lupus SLE?

[lynzard]

Hi there

Relly sorry, never heard of it. Will have a good old google. Take care

[joannebond360]

Been told I have characteristics of both diseases.

[joannebond360 in reply to joannebond360]

You can get a cross over between both

[donna in reply to joannebond360]

Hi thank you for replying to me .sorry to hear you have a cross over..there seems to be a lot of info left on my original question now so l hope you will get some help information to xxx bestwishes Donna xx

[caz59]

Hi donna. can you describe what Bechets is please, never heard of it.

[donna in reply to caz59]

Hi caz59 , thanks for leaving a reply.there seems to be quite a few explanatory replies to my question now so I hope you will find them as helpful as me ..I know what my symptoms are ,but now reading so much has linked a lot more together..the never ending diagnoses puzzle! Bestwishes Donna

[Hidden]

Hi Donna, i was diagnosedwith Behcet disease and Sjogren,raynald last year. This year with SLE.If i am right someone correct me if i am wrong please, but Behcet is to do with inflamation of the arteries and blood vessels. I think Rheumy told me last year i have it at back of my eye and if i am right it can also be called vasculitis of the eye! Not sure on that but maybe someone on this forum can put me right! It is a rare disorder of the immunity. I callapsed with it last year. I see the eye clinic every 3 months and so far its stable and not active, the main artery behind my eye.

[donna in reply to Hidden]

Hi smurfette43 thanks for your reply..I'm sorry to hear your having such a rough tome with it all x hope things settle own for you very soon xxx bestwishes Donna x

[tracynoe]

Behcet's is a rare form of Vasculitis and can cause a huge array of problems and symptoms there is a dedicated section of healthunlocked for Vasulitis UK

[donna in reply to tracynoe]

Thanks tracynoe for pointing me to the vasculitis UK HU forum..didn't make the link myself..bestwishes donna

[RichardE]

Hi everyone.

As smurfette43 and tracynoe say, Behcet's is a form of Vasculitis - an autoimmune disease causing inflammation of the blood vessels. Some types are similar to Lupus and people with SLE can sometimes have Vasculitis as a secondary condition.

As well as our HealthUnlocked page we have some more information on Behcet's and the other types of Vasculitis on our website :

vasculitis.org.uk/about-vas...

By the way Vasculitis UK have been invited to have a stand at the Cambridgeshire branch of Lupus UK's information day next month. So if any of you are coming along to that event please say hello.

Richard,

Vasculitis UK.

[donna in reply to RichardE]

Hello Richard ,thank you for taking the time to reply to me about the Bechets and linking to the vasculitis website.. more reading! and learning.i will also check out the HU forum..as I mentioned I haven't been diagnosed as yet with Behcets but my GP believes it is what's going on...there is certainly a new twist to my symptoms..never a dull moment!

Bestwishes Donna

[RichardE in reply to donna]

You're welcome Donna. Do shout if you have any questions about Vasculitis and I'll try my best to help.

Oh and your GP sounds pretty switched on to autoimmune diseases. In our experience GPs often know little to nothing about Vasculitis !

All the best,

Richard.

[Hidden in reply to RichardE]

To Richard.I would be very interested to go. Where can i find out the information and place where it will be held and the time? As i will have to arrange child care.Thanks for letting us know.

[RichardE in reply to Hidden]

The Cambridgeshire Group of LUPUS UK has organised this event for the 12th October 2013 at the Wellcome Trust Conference Centre, Hinxton, Cambridge.

I believe that the event has proved very popular and I think they now have a waiting list for places. But if you contact Shelagh Cheesman via [e-mail] she will be able to let you know the current position for places.

[Mainshah]

RichardE your right there my gp now as little as I did lol, she dint nw what was going on with me so suffered for 4 weeks with aches and pains and stayed in a flare up for that long until I cunt walk a few steps to the bathroom, due to a rash on my legs an over sized / swollen feet.

Took matters in my own hands then went to hospital and with in a week was diagnosed with lupus SLE.

GPS now very helpfull and keeps a good eye on me