I have had another frustrating conversation with my rhuemy nurse. Basically none of my bloods show any inflammation, I have had a positive ana on 2 occasions tested 3 months apart but were different patterns and then another ana test done which was negative. My symptoms are
Joint pain (which has gone since starting azathripoprine and plaquinel)
Mouth Ulcers (which went when started medication and has just returned after 1year)
Muscle pain and spasms
to name a few.
I have had numerous doctors tel me its a lupus like condition that im suffering with. Then at my last appointment a different doctor looked at my notes and the doctor and nurse said its not lupus or rhuematology problem.
Im still suffering and waiting for my appointment (should have been seen in may) spoke to the rhumey nurse who said she has told the gp not to keep sending me to rhumey department as she doesnt feel it is that problem,
Im now left in a position where im taking medication and now unsure if I should as they seem to think its not a rhumey problem and I dont want to be taking medication just for the sake...if that makes sense.
I have decided to stop taking the medication to prove to them I need it as no doubt the joint pain will return.
I know that this is not an ideal thing to do but I am desperate as if im knocked off the books at the rhuemy department where do I go?
I would like to know how long does it take for the drugs to get out of your system?
At the moment my mouth has broken out in loads of huge uclers which are REALLY painful so im guessing the plaquinel isnt working any longer?
Sorry for the long ramble im feeling very alone with this. I had a similar problem in my teens where I had lots of vague symptoms and doctors would fob be off that it was nothing and in the end it turned out to be graves disease which I ended up needing a thyroidectomy to treat. I can really see history repeating itself here.