Following an MI in May, I've been really impressed with my cardiac care so far. After initial assessment have now been enrolled on to the local cardiac re-rehabilitation programme. This involves group sessions with exercise & diet advice, among other things. I have been assured that everything necessary will be done to accommodate the problems I have with fatigue, & the various limitations, caused by lupus. Great!
My assessor admits she knows little about lupus, but has done some research already. Impressed! I provided her with a copy of the article in the latest News & Views mag about effects of exercise on lupus patients. Which she seemed keen to read. Super!
So imagine my disappointment when I was told the course starts at 9.15am, at a busy city centre location. There are no afternoon, or even, late morning sessions. Major bummer! I haven't been able to get up before 9 am for a long time. Except when an emergency visit to the GP is required, & then it's straight back to bed afterwards.
In addition to this, the programme involves the exercise element first, & then a talk afterwards. Exercise first thing in the morning? My hands are shaking when I put the kettle on for a first cuppa, so imagine the mess on a treadmill or rowing machine. Yikes! And then the need to sit through a talk afterwards. Are they kidding me or what? I'll need to go straight back to bed for a mega dose of ZZZZZZ's.
So, is there anyone out there who has done this programme & survived? Please give me some hope that I am not going to expire on a rowing machine in front of a whole lot of oldies, as I am told I am the youngest one in the group for some time. No offence intended to my fellow participants, but I never expected to be doing this at the tender(ish) age of 45.
Aw, the joys of lupus. But rest assured I will give it a go, & test out their promise to accommodate my illness. Even if it's just to make a point, but hopefully to improve the situation for other participants with chronic fatigue.
Stay strong lupies. X