HI

[Toya]

I try fight my lupus and need help

[Toya]

i hope everyday things get better

[janiceray]

Tell us Toya,what help you want!!!

Every day we fight this what we have, but each of us fight it in a different way,

according to what is happening to us.

So if you try and explain im sure someone will be able to help you though.

Love & Sunshine

Jan xx

[Toya in reply to janiceray]

thanks for comment i will explain but dont know where to start how x

[NiksB]

hey let us know how we can help, I see it as a fight but i am learning that you cant fight every fight, you need to pick your fights otherwise you will be exhausted and torn every which way. When your ready let your fingers type and we will try and answer.

[Toya in reply to NiksB]

thanks for comment i will explain but dont know where to start how x

[lucy-may]

Hi thinking of you, we all have times we have to fight, not easy, so share your thoughts with people that understand. no matter what it is. Its has helped me when l have been very low, and had lost all the fight in me.X X X

[Toya in reply to lucy-may]

thanks for comment i will explain but dont know where to start how x

[lindabrown]

Yes let us know whats wrong and we will try to help you. Its a fight everyday isnt it and only us with lupus can understand what you are going thru.x

[Toya in reply to lindabrown]

thanks for comment i will explain but dont know where to start how x

[Hidden]

Hey Toya, its hard I know. Sometimes I wish I had a tattoo on my forehead so people around me knew I needed some help, time, understanding??? Lupus is awful in that it has no physical signs and yes, lets face it, people think we are making up just how bad we feel. The worst bit is, WE dont understand it so we grin and bear it. Please dont feel helpless. I got 2 amazing kids but at times feel lost, alone, useless.............its ok to feel like that IF you know where to tell people thats how you feel. This place is good for that. You can vent and listen and disappear for a bit (like I have) but i promise you will come back to see how your new friends are doing. You can message (behind the scenes) if you like. let me know if you wanna talk x take care. Make Lupus the Loser not you or your loved ones x x x x

[Toya in reply to Hidden]

thanks for comment i will explain but dont know where to start how x

[janiceray]

Toya

Try and start at the being if you can Or scramble some words in that we might be able to get an idea to where your at,

Most of us here have Lupus and totally understand and have been there and got the tee shirt(excuse the pun)

You have stared by just asking for help,now go to the next stage,go on you can do it.

[NiksB]

I like the lupus leaflets because they write lupus hard to say harder to live with... please write when you are ready..

[emmalemon]

Hi Toya

Things will get better! I know they will, I can't believe where I am now when I look back a few years to where I was then. Don't let the stupid disease win !

thinking of you,

e x