Well, I was happily reaquainted with my old Rheumatologist in December. It was him who diagnosed and very successfully treated me with SLE and Rheumatoid Arthritis until I moved to a different town. Over four years of attending this other hospital, I learned, to my horror how easy it is to virtually fall off the Rheumatologists radar. I am now realizing the potential consequences of poor monitoring and inadequate intervention.
Persistant symptoms were attributed to stress (I was constantly sent away after being told my desease was not active, despite my body telling me otherwise). Now, I have had more thorough tests, it is evident that active SLE, which has obviously been grumbling along for ages, has caused certain damage. Further investigation should indicate the extent of the problem, but I won't be too happy if it is significantly irriversible or could have been avoided with proper monitoring.
At least now I have peace of mind, knowing my consultant is "on the ball" and I am positive we'll get things settled down in the end.
All the best