I have been reading posts here since my diagnosis at the end of July, but have not participated in any of the discussions, even though I have been very moved by all of your stories and send my love and best wishes to each and every one of you who are fighting or caring for someone with this awful disease.
I was diagnosed with sclc extensive on July 26 this year, with ct scan showing bilateral lung mets, a 7.2cm right upper lobe mass with mediastinal, hilar and subcarinal lymphadenopathy and a left frontal cerebral met to brain...........
I was started on chemo on 31st July (the day before my 54th birthday) Cisplatin and Etoposide for four rounds, I was also taking Dexamethasone and came through it all reasonably well, plenty of side effects......completely bald within two weeks, joint pain, sleeplesness, fatigue etc but in the main coped reasonably ok.
My initial prognosis was 6-9months so was disappointed last week when I was told my prog is now 10 months, so thats after going through 3months of hell to get an extra month!!!!!!!
On Monday I am beginning WBR for 5 days, I am really scared about this, does anyone have any advice on how to deal with the side effects of WBR?