Day 2 of taking Afatinib: My partner... - The Roy Castle Lu...

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Day 2 of taking Afatinib

VeeJayBee profile image
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My partner was diagnosed with stage 4 lung cancer (nsclc) in June 2009. He has had Chemotherapy, Radiotherapy & Tarceva. It has now spread to the spleen & he goes for a bone scan next week as they think it has also spread to his bones.He started taking the new unlicensed drug Afatinib yesterday & so far no side effects! He has been told that the side effects can be more severe than Tarceva. I really hope this drug works for him as we are fast running out of options. He never complains & takes it all in his stride, I feel guilty as I am not coping very well just now & can't seem to snap out of it. I would welcome any advice or suggestions of how to cope. I'm not very good at blogs but I hope that it might help writing things down.

Val.

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VeeJayBee
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Billculbard profile image
Billculbard

Hi there. Nothing is easy with cancer, whether you're the patient or partner. Paving suffered from lung cancer myself 12 years ago, I still feel that my wife had a more difficult time than I did, so yes, it IS difficult for you to cope.

Hopefully this drug will help, so just keep strong and think positive - not easy!! You should try to keep in contact with CNS., so that you can get the best medical advice. We're all behind you! Best wishes, Bill

AlliTB profile image
AlliTB

Hi Val, I found writing things down & receiving everyone's supportive comments really helpful so I would suggest staying in touch & sharing your stresses & concerns. Rant if you want to, it is the most difficult time & you need to let your emotions out at times. I wish you & your partner well & will keep everything crossed that this new drug helps. X

VeeJayBee profile image
VeeJayBee

Thanks to Bill & Alli for your replies on my blog sorry it has taken me a while to reply but I was in a bad place but I am back on track now thank goodness.Keith has been on the Afatinib for nearly 3 weeks now & isn't doing too bad apart from a few side effects which are manageable at the moment. We get the results of a bone scan on monday & are hoping for some good news for a change. We are both trying to remain positive & strong. We are just taking each day as it comes instead of worrying about the future. I will keep you posted & thanks again for your support.

Val. X

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