Experiences with Afatinib | HealthUnlocked

46 public posts

Adenocarcinoma of Lung

He is on Afatinib the last two weeks but he is suffering from all three blowup of the side affects in the first week , mouth sore/ ulcers , , diarrhoea, face n chest rashes.He is on Afatinib the last two weeks but he is suffering from all three blowup of the side affects in the first week , mouth sore/ ulcers , , diarrhoea, face n chest rashes.

Ace467in The Roy Castle Lung Cancer Foundation

Target Therapy for NSCLC stage 3 with EGFR mutation ?

If funding can not be sort then I think Afatinib will be offered, again has anyone got any experience of using this drug etc. Thank you for your time and trouble in reading my post. EmmaIf funding can not be sort then I think Afatinib will be offered, again has anyone got any experience of using this drug etc. Thank you for your time and trouble in reading my post. Emma

e-priestmanin The Roy Castle Lung Cancer Foundation

Afatinib

My mum has been taking Afatinib for her lung cancer on a 20mg dose. The tablet has been doing its job, however my mums eyes have been very sore, should already suffers with dry eyes.My mum has been taking Afatinib for her lung cancer on a 20mg dose. The tablet has been doing its job, however my mums eyes have been very sore, should already suffers with dry eyes.

Bella426in The Roy Castle Lung Cancer Foundation

Afatanib side effects

She has been taking Afatinib for 10 days now and is really struggling with side effects. She has diahorrea several times a day, acne rash on upper body particularly bad on her scalp maming sleep difficult and mouth sores. She has her given an Immodium type of tablet but it's not helping much.She has been taking Afatinib for 10 days now and is really struggling with side effects. She has diahorrea several times a day, acne rash on upper body particularly bad on her scalp maming sleep difficult and mouth sores. She has her given an Immodium type of tablet but it's not helping much.

MsLizin The Roy Castle Lung Cancer Foundation

CT Scan Results, New Medication :-(

This is going to be a long post, so apologies. First of all, I am so glad to have found this community. Your stories, experiences, outlook, perspectives, etc. are immeasurably valuable as we all try to navigate this condition and keep pressing on- together. This isn’t easy. This is real. This isThis is going to be a long post, so apologies. First of all, I am so glad to have found this community. Your stories, experiences, outlook, perspectives, etc. are immeasurably valuable as we all try to navigate this condition and keep pressing on- together. This isn’t easy. This is real. This is

NamasteLovein SHARE Metastatic Breast Cancer

New member

Hi, im Angie, i was diagnosed with CML in October 2016. Ive been on imatinib 400mg since diagnosis and the main side effect being chronic fatigue. Just recently the fatigue has gotten worse and the consultant said its nothing to do the meds or illness. Got to say its really getting down now, i go swimmingHi, im Angie, i was diagnosed with CML in October 2016. Ive been on imatinib 400mg since diagnosis and the main side effect being chronic fatigue. Just recently the fatigue has gotten worse and the consultant said its nothing to do the meds or illness. Got to say its really getting down now, i go swimming

Swimmer19in Leukaemia CARE

A quick question before I forget it about ,,Acalabrutinib

Good morning I've been trying to learn about Acalabrutinib but having some problems finding much information ,,,,,,, and then deciphering it. Anyway, my quick question ,,, is Acalabrutinib a drug that you take for a long period of time ,,,, like Imatinib ...... my understanding with Imatinib is mostGood morning I've been trying to learn about Acalabrutinib but having some problems finding much information ,,,,,,, and then deciphering it. Anyway, my quick question ,,, is Acalabrutinib a drug that you take for a long period of time ,,,, like Imatinib ...... my understanding with Imatinib is most

michaelmacin CLL Support

Treatments after Immunotherapy

Hello! After the operations my doctors gave me Sutent for 7 months. Then there was resistance and I had surgery on the psoas muscle, which is the most affected part. After the surgery my doctors gave me Nivolumab. After 7 months, I had resistance again. Now I am without treatment and my doctors proposeHello! After the operations my doctors gave me Sutent for 7 months. Then there was resistance and I had surgery on the psoas muscle, which is the most affected part. After the surgery my doctors gave me Nivolumab. After 7 months, I had resistance again. Now I am without treatment and my doctors propose

Mafaldaaain Kidney Cancer Support

Been awhile!

USA: 2014 - present 2014: Spleen upper limits of normal; Liver mild enlargement; shotty lymph nodes at axillary and mediastinal; multiple renal cyst seen bilaterally; diverticulosis in the sigmoid colon without vidence of inflammation; Zap-70+; deletions at 11q24 and 13q14; unmutated IgVH. WBC from AugUSA: 2014 - present 2014: Spleen upper limits of normal; Liver mild enlargement; shotty lymph nodes at axillary and mediastinal; multiple renal cyst seen bilaterally; diverticulosis in the sigmoid colon without vidence of inflammation; Zap-70+; deletions at 11q24 and 13q14; unmutated IgVH. WBC from Aug

tedrogin CLL Support

Names of targeted therapies ...mab and ...ib

Chuck Maack found this web page and posted the link to it in another prostate cancer forum. I think it gives a really clear and useful explanation of names like "ipilimumab" and "imatinib". https://voice.ons.org/news-and-views/the-names-of-targeted-therapies-give-clues-to-how-they-work AlanChuck Maack found this web page and posted the link to it in another prostate cancer forum. I think it gives a really clear and useful explanation of names like "ipilimumab" and "imatinib". https://voice.ons.org/news-and-views/the-names-of-targeted-therapies-give-clues-to-how-they-work Alan

AlanMeyerin Advanced Prostate Cancer

How Imatinib Transformed Leukemia Treatment and Cancer Research

They are making big strides in cancer treatment -- Doctor transformed the mainstream medical misconception of cancer and its treatment in 2001 leading to the development of Imatinib - (Gleevec®) Can Genetic Alterations Cause Cancer? In the 1950s, scientists had a limited understanding of how genesThey are making big strides in cancer treatment -- Doctor transformed the mainstream medical misconception of cancer and its treatment in 2001 leading to the development of Imatinib - (Gleevec®) Can Genetic Alterations Cause Cancer? In the 1950s, scientists had a limited understanding of how genes

George71in Advanced Prostate Cancer

News from the FDA: the indication for a drug targeting EGFR is expanded to uncommon mutations

This FDA approval was based on trials studying the response to afatinib in patients whose tumors had mutations in EGFR.This FDA approval was based on trials studying the response to afatinib in patients whose tumors had mutations in EGFR.

MFH_Advocatein Lung Cancer Support

Can I stop medication?

If I were to start taking Ibrutinib, or Dasatinib, xxxtinib... say for 6 months, and I decided to stop (arbitrarily decided) ... would I have made myself worse... than had I waited, say, 6 months? no symptoms or very slight, WW 4.5 years. 64 yo. I don't mean whether or not one is required to taper offIf I were to start taking Ibrutinib, or Dasatinib, xxxtinib... say for 6 months, and I decided to stop (arbitrarily decided) ... would I have made myself worse... than had I waited, say, 6 months? no symptoms or very slight, WW 4.5 years. 64 yo. I don't mean whether or not one is required to taper off

tedrogin CLL Support

Growing fatigue and getting no answers

Have any other of you long term afatinib users found similar issues or have anything to add?? Please help as I am starting to feel that things are changing for the worse TomHave any other of you long term afatinib users found similar issues or have anything to add?? Please help as I am starting to feel that things are changing for the worse Tom

tdes69in The Roy Castle Lung Cancer Foundation

NSCLC EDFR Migration Stage 4 LC at 37.

Also - happy to hear from anyone else on Afatinib to share experiences and tips on the side effects.Also - happy to hear from anyone else on Afatinib to share experiences and tips on the side effects.

AdamLaverin The Roy Castle Lung Cancer Foundation

Gilotrif/Afatinib

I am EGFR positive and have been taking gilotrif/ Afatinib for almost 2 months now. I was wondering if there is anyone out there on this drug and is it working? I will have scans again on the 17th. Of this month. I try and stay positive.I am EGFR positive and have been taking gilotrif/ Afatinib for almost 2 months now. I was wondering if there is anyone out there on this drug and is it working? I will have scans again on the 17th. Of this month. I try and stay positive.

Deb1516in Lung Cancer Support

Starving To Death

Consultant refusing to insert NG tube to feed temporarily because Mum has lung cancer (stage 4, on Afatinib) and confused due to UTI. Tonight (Wed) they started with the correct antibiotics for ESBL. Can doctors refuse to feed patients?Consultant refusing to insert NG tube to feed temporarily because Mum has lung cancer (stage 4, on Afatinib) and confused due to UTI. Tonight (Wed) they started with the correct antibiotics for ESBL. Can doctors refuse to feed patients?

Batgirlxin The Roy Castle Lung Cancer Foundation

Swallowing Anxiety

Consultant refusing to insert NG tube to feed temporarily because Mum has lung cancer (stage 4, on Afatinib) and confused due to UTI. Last night (1 week later) they started with the correct intravenous antibiotics for ESBL. Can doctors refuse to feed patients?Consultant refusing to insert NG tube to feed temporarily because Mum has lung cancer (stage 4, on Afatinib) and confused due to UTI. Last night (1 week later) they started with the correct intravenous antibiotics for ESBL. Can doctors refuse to feed patients?

Batgirlxin Anxiety Support

Questions on imatinib

I was diagnosed with CML in December 2016. I have been on Imatinib since January and am responding very well apart from a few side effects. Swollen eyes, lower legs and night sweats. I got over nausea and acute tiredness quickly. I was wondering if any one else has my problems and if so how long it couldI was diagnosed with CML in December 2016. I have been on Imatinib since January and am responding very well apart from a few side effects. Swollen eyes, lower legs and night sweats. I got over nausea and acute tiredness quickly. I was wondering if any one else has my problems and if so how long it could

Katesilgrimin Leukaemia CARE

CML & chest pain

Good morning! I'm Nancy, I'm 21 years old and new here. I've recently been diagnosed with a chronic myeloid leukaemia, I'm also anemic, vitamin D deficient and my amylase count is high (but not that high that it's worrying). So I'm here to ask if any of you might have an idea of what I could have onGood morning! I'm Nancy, I'm 21 years old and new here. I've recently been diagnosed with a chronic myeloid leukaemia, I'm also anemic, vitamin D deficient and my amylase count is high (but not that high that it's worrying). So I'm here to ask if any of you might have an idea of what I could have on

Nashkahin Pain Concern