Experiences with

Afatinib

Hi I’m on afatinib 50mg have been ok but Iv got a rash on my face nose is blocked and eyebrows all dried up I look like Iv be burned any ideas how to relieve would be appreciated

Hi there Can anybody recommend a makeup that is suitable for rash prone skin I am on afatinib 50mg and have a red face at the moment 🙈though I won’t wear anything while I have it but after it’s gone I would like to get some slap on.

Hi I was diagnosed with stage 4 lung cancer in February and I am now taking afatinib and the tumour has shrunk thank goodness tho now after all this time my arms and stomach have broke out in the “rash” I was told to plaster myself in cetriban but was wondering does anybody have any tips

NSCLung cancer changing to small cell.

All in all I feel OK will be happier once they restart my Afatinib but until then I just keep chugging on. I have a very talkative dog and cat that keep me company. :)

He is on Afatinib the last two weeks but he is suffering from all three blowup of the side affects in the first week , mouth sore/ ulcers , , diarrhoea, face n chest rashes.

Link below says that it is to be used "for disease without the KIT[D816V] mutation". https://www.nice.org.uk/guidance/gid-ta10503/documents/final-scope https://www.orpha.net/consor/cgi-bin/OC_Exp.php?lng=EN&Expert=98850

Did this for 3 reasons. I am one of a handful of around 20 people taking both drugs with rux maybe one of 10 taking it with with a trial drug as well. Why do I do it? Other patients took the gamble to try rux and imatinib and lost their gamble so I feel I owe my opportunity to them. Pure research. This

You can all see my post from 2 or so weeks ago. I knew shortly after my iron levels were elevated due to transfusions. Ferritin is also an inflammatory marker but my total iron combining capacity has also been rising steadily ( TIBC). I cannot reduce my transfusion dependency as I have gone down to 52

This is a follow up to my quest to prevent BCR's and to maim/inactivate sleeping cancer cells, for those men who reach PSA Undetectability with clean scans. There is an underlying theme thru some of my posts that says--->when the treatments stop, it is time to treat. Yes some men continue to treat with

Hi. My mom just started a new treatment pill called Gilotrif this week. She took Targrisso and had to stop due to side effects and disease progression it didn’t help her at all. She’s done 6 rounds of chemotherapy and she recently had “moderate disease progression” after her 1 maintence chemo round.

This is going to be a long post, so apologies. First of all, I am so glad to have found this community. Your stories, experiences, outlook, perspectives, etc. are immeasurably valuable as we all try to navigate this condition and keep pressing on- together. This isn’t easy. This is real. This is

Hi, im Angie, i was diagnosed with CML in October 2016. Ive been on imatinib 400mg since diagnosis and the main side effect being chronic fatigue. Just recently the fatigue has gotten worse and the consultant said its nothing to do the meds or illness. Got to say its really getting down now, i go swimming

Good morning I've been trying to learn about Acalabrutinib but having some problems finding much information ,,,,,,, and then deciphering it. Anyway, my quick question ,,, is Acalabrutinib a drug that you take for a long period of time ,,,, like Imatinib ...... my understanding with Imatinib is most

If funding can not be sort then I think Afatinib will be offered, again has anyone got any experience of using this drug etc. Thank you for your time and trouble in reading my post. Emma

My mum has been taking Afatinib for her lung cancer on a 20mg dose. The tablet has been doing its job, however my mums eyes have been very sore, should already suffers with dry eyes.

Hello! After the operations my doctors gave me Sutent for 7 months. Then there was resistance and I had surgery on the psoas muscle, which is the most affected part. After the surgery my doctors gave me Nivolumab. After 7 months, I had resistance again. Now I am without treatment and my doctors propose

She has been taking Afatinib for 10 days now and is really struggling with side effects. She has diahorrea several times a day, acne rash on upper body particularly bad on her scalp maming sleep difficult and mouth sores. She has her given an Immodium type of tablet but it's not helping much.

USA: 2014 - present 2014: Spleen upper limits of normal; Liver mild enlargement; shotty lymph nodes at axillary and mediastinal; multiple renal cyst seen bilaterally; diverticulosis in the sigmoid colon without vidence of inflammation; Zap-70+; deletions at 11q24 and 13q14; unmutated IgVH. WBC from Aug

Chuck Maack found this web page and posted the link to it in another prostate cancer forum. I think it gives a really clear and useful explanation of names like "ipilimumab" and "imatinib". https://voice.ons.org/news-and-views/the-names-of-targeted-therapies-give-clues-to-how-they-work Alan