When I wrote my last post I was so full of hope and felt happy again. I had forgotten what that was like! However, my original Dr. has overruled my new Dr. and once again I am getting no help or support and I am feeling so depressed. I have had 3 day's where the pain has been unbearable and yesterday was truly horrendous and that was with Opioid's and Oramorph.
I was expecting to be sent to see an Orthopaedic Consultant about the 2 fractured vertebrae and finding out, once and for all whether I have spinal cancer or not and why is the pain there getting so much worse? I was also waiting for a referral to my Thoracic Consultant who found the lung cancer after 15 month's of no treatment. I am still waking up in the middle of the night coughing and coughing and being violently sick for over an hour and a half and this is the 7th test I have put in for that but it seems my Dr. isn't going to send me now. The new Dr. told me that he would but my original Dr. appears to have overruled him ! I don't know what to do any more because I feel too tired to fight any more !
Sorry if I'm rambling but does anybody know how long it would be for spine cancer to show up after a Lobectomy? One Radiographer said that I had cancer at the 2 fracture's and then our hospital 's Radiographer said no it was Osteoporosis. Considering they left me with lung Adenocarcinoma for 15 month's, didn't tell anybody and an Australian Radiographer had seen the tumour on my lung but our hospital forgot to say anything until I was rushed to hospital with Pneumonia. Australia because our hospital couldn't get enough Radiographer's!
I know that I shouldn't moan but today is a down day. Sorry! Am thinking of you all . Please take care and I send my love to you all.
Love and hugs to everybody. Danni xxxxx
Tested positive for covid AGAIN
After two negative biopsies doctors still believe is lung cancer.
Concerned - sorry for posting
Adenocarcinoma Left lung
Hi Danni I am so sorry to hear you are going through so much pain and not getting the help or answers you need.All I can say is keep trying to speak to someone whether it’s MacMillan or your lung nurse and hopefully they will listen and get you the help you need.I can imagine you must be exhausted and feel like you are getting nowhere but please don’t give up.I know it’s not much help but I will pray for you and send you love .Is there no one who can speak on your behalf a friend or relative? I do hope you get some help soon ❤️🙏
I just wrote back to you , pressed the wrong button and lost it ! I have done that before so I really need to concentrate! Thank you so much for your reply. Prayer's and support mean a lot and to know that people care . I am really lucky with our friend's . My family live quite a long way away but they are so angry and upset for me and my husband. One of my sister's has also gone through cancer and she has also had no help or support from the medical profession apart from an operation to remove the tumour, Bile duct and part of her Pancreas! We live at opposite ends of the country so is it our age that stops us getting help and support? I am so sorry to hear about your husband. It's not just the person who has cancer who needs help and support but partner's , family and friend's. I have already had so much support from people here and I am so grateful for that. I wanted to let you know that I am thinking of you both and will pray for you also. People here are amazing. I will try to keep fighting but I'm getting really tired . The Dr. doesn't want to hear from my husband or family so it's up to me to keep fighting but nobody should have to. Saying all of this, I truly do appreciate everything that Nurses have done, through and before and after the Pandemic because they are taking on more and more of the load. I am thinking of you both.
Sending love and hugs,
Danni xx