Admitted to hospital with what I thought was a chest infection and bad reaction to antibiotics on Monday - turns out I have 2 sites of Mets on the brain. Totally floored me.
Made the decision to "come out" to extended family and friends. What a difference that's made. The support and love I'm getting is unbelievable, and actually it's not me anymore, it's we! I can let the facade down and handing over control doesn't mean giving up after all- it's actually empowering to be able to let people in and tell them what we need to help us.
2nd Immuno was scheduled for Tues but that's on hold now due to high dose of steroids ( was a lot of swelling hence the headaches and difficulty focusing). Radiotherapy now looks likely so waiting for that appointment in the next few weeks I suppose.
My outlook is positive though after a very shaky start on Tuesday - so many of you on here have been through this so I know I can do it and get through it - you have all been my family since day one and now I have the blood relatives on side too along with a healthy mix of religion and prayers - all bases covered I think!
Steroids have turned me into a bit of a night owl - went to bed 9pm unable to keep my eyes open, slept till 3am, woke up bright as a daisy eager to get the hoovering done but settled for some coffee, toast and texting!
Goodnight my friends and hope you are all doing great. X
Written by
Aamar1
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So sorry to hear of your new developments and at the same time you have written such an inspiring post which is bound to touch many hearts.
This must be so difficult for you and very glad you have spoken out to family and friends, it is with the love of everyone that does get you through on a daily basis, even people you have never met as in the forum.
You may find this link useful, it is our booklet on Brain Metastases:
Hope your headaches have subsided and you are feeling a little better on the steroids, albeit the sudden energy you have when no one else is awake, do rest when you can and be good to yourself.
If you wish to discuss anything you can either email us at lungcancerhelp@roycastle.org or our Freephone nurse helpline number on 0800 358 7200
So glad you now have the support of family and friends and you have let down your guard! Stay positive as you go through the next stage of treatment. Best wishes x
We are all different but I had 5 mets, treated with 1 treatment of Cyberknife and they have all nearly gone. Might be worth seeing if this suitable for you.
Hi - sorry to hear news but stay positive and strong!!! I to had two mets to brain - was manic on steroids for a while - cleaning, sorting, organising all through the night🤣🤣. One treatment of Steriotatic Radiosurgery last November and one has gone and the other one now only 8mm and been absolutely fine and not needed steroids again. Just been on Pembro since. Keep you chin up - huge hugs x
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