I've just had my second treatment with Pembrolizumab and the side effects of severe headaches that I suffered after the first treatment were happily absent.
This is a new turn in the route; a year ago I was diagnosed with NSCLC then a week after with Bowel cancer. The consensus was that they were both primaries which put the Multi-Disciplinary Teams in a dilemma on what to do first but the final decision was a right hemi-colectomy at the end of January and a right upper lobectomy at the end of March.
The colon pathology gave a completely result but the lung result moved from the original T1bN0M0 to a T2aN1M0 result in April. The move to N1 suggested accepting four cycles of adjuvent Cisplatin/Vinorelbin chemo which was tolerable despite being accompanied by attacks of neuropathic pain and Pulmonary Embolism in the middle of it, both of which were tamed.
I was so optimistic by the end of the chemo that I took it as given that it had worked and didn't chase my final scan for some weeks. Imagine my surprise at my first onco appointment it transpired that secondaries had grown on the adrenal gland and a further PET scan showed up an active mediastinal node. This means that I am now categorised as Stage 4, a state I had hoped to avoid, for now at least.
This was a bit of a blow but it turned out that with NSCLC, chemo failure and a positive gene test for PD-L1 (with negative for ALK and CGFR), I became eligible for the newly approved Pembrolizumab and now have new hope!
If the continuing treatment is as tolerable as this second treatment then my hope is enhanced. Because this treatment is so new in this country I am very interested in hearing about anybody's experiences and I will post my from time to time.
Good luck to everyone on this path