3 hours agonannyjanny
Well, it's 8 weeks today since my husband Steve started crizotinib. After a few initial hiccups - mainly stomach problems which can be kept pretty much under control - Steve is feeling better than he has for years! His appetite has returned, we are now managing to go for 6 mile walks and his back and shoulder pain has gone. We feel as if we've got our life back. Steve had a scan on 3rd November (less than 6 weeks after starting crizotinib) and today we went for the results. A bit disappointing as it was a mixed result. The pleural thickening has shrunk - hooray! - but some new nodules have popped up in the left lung - not so good!! It's possible that these could have appeared during the 3 weeks from baseline scan to starting crizotinib or the scan was performed too soon after starting it. Bloods were ok so we can carry on for now with crizotinib and the team will meet to review the scan and discuss the next step. We are really hoping Steve can stay on crizotinib and the next scan is kinder to us. Has anyone else been in a similar position? Hope all is going well for everyone.