Hi all. After 1 shot of palliative ra... - The Roy Castle Lu...

The Roy Castle Lung Cancer Foundation

5,952 members3,549 posts

Hi all. After 1 shot of palliative radiotherapy to her left lung for nsclc (with brain mets) and dexamethasone mum has improved greatly so

6 Replies

she has been offered chemo treatment with pemetrexed. She has a week to decide. Has anyone had this and how did it go for you?. I am looking for others opinions of this before we decide. We have not been told much at all such as if it will give her more time or what happens with no chemo. Waiting to talk to the macmillan nurse, any advice please?

Read more about...
6 Replies

Hi nicky ,my 57 year old husband stage 4 nsclc with mets on bone, spine, hips and lymph nodes, had 4 first line treatments of chemo. Following a partial response he is now on permextred as a maintenance and is just about to start his 5th cycle of this next week. His last scan showed he was stable. He has good quality of life, is taking regular walks and I have no doubt this is buying us more time. Everyone responds differently in this situation. I hope in consultation with all the medics you come to a decision that is right for your mum. Stay strong.

in reply to

Thank you for replying. Just a bit more time would be great so here's hoping that her response is along the same lines. All the best for your husbands fight. Xxx

Madalyn10 profile image
Madalyn10

Hi Nicky, my mum has nsclc stage 4 and has 4 first line treatments she too like florries husband is now on pemetrexed as a maintainence dose and is too said to be stable . She has a great quality of life dance classes twice a week, decorating ! Can't stop her ! She has tolerated it well just a little nausea and dry eyes but that's about it ?

I wish you all well with whatever you choose x

in reply toMadalyn10

Hi madalyn. That's great news about your mum, here's hoping that any response for my mum is as positive. Thank you for replying, all the best xx

jujuju profile image
jujuju

Hi I only had pemetrexed/Alimta with Cisplatin and its the cisplatin that's the awful stuff.Alimta is not too bad.The aim will be to reduce the tumours or hold it at bay.The gamble is doing nothing.Personally I will give anything a try.Best wishes.Julie x

in reply tojujuju

Hi Julie thank you for replying. I agree with you, it's a gamble to do nothing and even if not a reduction I'd take holding it back,My mum is just 56. All the best with your own mission too, Nicola x

Not what you're looking for?

You may also like...

my 58 y/o partner diagnosed with non small cell lung cancer in mediastinum with lymph node involvement and bone mets

hi there. Not really sure what to ask as this is such a huge shock as it has been so quick....
Ninjacat profile image

My mum is struggling to eat

Hello, I’ve just joined the forum. My mum was diagnosed with Stage 4 lung cancer in December 2019....
R60NDA profile image

Update on my mum

Hi all My mum is deteriorating fast! She got rushed to hospital on Saturday as she was totally out...

Advanced Small Cell Lung Cancer

My wife was diagnosed with Lung Cancer in Feb19. She was told in march it was Advanced small cell....

Palliative chemo - pemotrexid and cisplatin

Hi, I've been reading posts on here for a week or two, since my mum was diagnosed with terminal...
Esme85 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.