Is it normal to look like there is nothing wrong with you even your on a stage 4 lung cancer and being treated by chemo?

My mom has a lung cancer and doctors says she's already on a stage 4 thats why she needed to be treated by chemo, we've have 2nd,3rd,4th opinion in different hospitals by the different doctors... june 25 will be her 6th times of chemo, and we don't know yet what will be next. everyone is wondering that if shes really on a stage 4 of a lung cancer, how come she looks so fine and normal despite of her situation, aside from she get's tired easily, maybe because of the chemo, Is it really normal to look like there is nothing wrong with you even your on a stage 4 of lung cancer? Im not ever sure if she even lost weight. anyone with the same situation with my mom?

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  • Hi,

    I am a 52 year old lung cancer patient with stage 3 inoperable lung cancer. After being on a targeted therapy for 7 months and now on IV chemo (4th round tomorrow) I understand exactly what you mean. Apart from a couple of days after the chemo, when I feel tired, I am otherwise fine and continue to do the same job I always have. I don't feel very different myself physically and when any of my friends/work colleagues discuss my situation they all say they can't understand how I look so well. That's got to be a good sign and hope your Mum continues to be well

    Sue xx

  • I' sorry to hear that you are almost the same situation with my mom, i pray everyday for all the cancer patient. I am really praying for a good result of her 6th chemo next week and you'rs as well. Stay strong and continue beinh positive for the good result

    Aya

  • Aya

    This must be a worrying and confusing time for your family. It can be difficult to understand an illness when the signs are very difficult to see. People do vary tremendously in how they feel and cope with their illness. It may in part be due to the location of her tumour, which might not be affecting her breathing. Your mum's resilience will be a good resource for her during chemotherapy and any follow up treatment. if you are looking for more information we have a booklet called Lung Cancer Answering Your Questions and a DVD titled Living with Lung Cancer. These can be sent free of charge to you or your mum if they might be useful. For more information look on our website roycastle.org or call 0333 323 7200 option 2.

    I hope you had your family are coping,

    best wishes

    Lorraine

    on behalf of the Information & Support Team

  • Chris my wife is also stage 4 with Mets she has had 5 cycles of chemo and she has been really ill all through it after the 3rd cycle. She was on Cisplatin/Pemetrexed for 4 cycles and because of the side effects she is now on Carboplatin/Pemetrexed for the last 2 cycles. She has also had whole brain Radiotherapy so I think this has not helped with her symptoms. Before being diagnosed with this she was fit and was still working at 62. The treatment has really knocked her about quite a bit. CT scans are showing good results.

    So I think depending on your treatment will dictate how you will feel.

  • He'll Chris, I too have been diagnosed with stage 4 inoperable lung cancer. Last year I went through endless rounds of IV chemo using Avastin, carboplatin & pemetrexed. My profile photo was taken after after 5 rounds of chemo. This year the oncologist is trying IV chemo of gemcitabine & carboplatin. I'm even more tired but still look the same. All my friends comment constantly that I don't look any different & even I can't believe I have cancer. Sometimes I want to scream 'but I feel horrid' when suffering side effects & other times I welcome the comments. Everyone reacts differently. There seems to be no set pattern. I wish your mum the very best & hope her future chemo sessions & future scans prove positive x

  • I am very sorry to hear about your condition~ i may not know exactly how much pain you are dealing physically, but i know the pain mentally and emotionally. My dad just passed away this year and knowing that my mum is fighting for her life..., really kills me and break my heart:( i should be on her side everyday, but i have to work abroad so she can have all the treatments to save her life, and give her everything i can give. She's been here in japan for 2 weeks a couple of weeks ago, because she wanted to have a vacation, she wasn't really active to go here and there, but i know that she was very happy to be with me.

    I pray for the best result after her 6th round of chemo next week, and for every cancer patient. Keep your faith and i know god will hear your prayers.

  • Hi Lulla, you look great girl. I'm also on Carbo/Pemetrexed but what is avastin. I've already had four rounds of Cisplatin/Vinoalbine last year which didn't work so now am stage IV as it's spread to other lung. Like you the worst symptom is the fatigue for 4-5 days. I'm meant to have four rounds with a ct scan between round 2-3 and I suppose if there is no shrinkage then they'll try another type of chemo, but if two don't work why should another one.? Keep well. Moni x

  • I am very sorry to hear about your condition~ i may not know exactly how much pain you are dealing physically, but i know the pain mentally and emotionally. My dad just passed away this year and knowing that my mum is fighting for her life..., really kills me and break my heart:( i should be on her side everyday, but i have to work abroad so she can have all the treatments to save her life, and give her everything i can give. She's been here in japan for 2 weeks a couple of weeks ago, because she wanted to have a vacation, she wasn't really active to go here and there, but i know that she was very happy to be with me.

    I pray for the best result after her 6th round of chemo next week, and for every cancer patient. Keep your faith and i know god will hear your prayers.

  • I apologise profusely calling you Chris. Had just got back from a chemo session and one thing I have noticed, it gives me 'chemo brain full of mush!'

    Regards, Tallulah x

  • God bless your mum ... We are about to start treatment I think for my mum (stage 4 NSCLC) ... Not sure what to expect

  • Hi Ayah. I have stage 4 with bone mets. I have been on Tarceva for nearly 4 months now and have had 1 dose of radiotherapy. The tumour has shrunk but the bone mets have increased in size and number. They have told me I am still terminal. My breathing is fine now but the mets are starting to hurt again. I am 52 with a loving wife and kids and this is breaking our hearts. I too do not look that ill but inside I am really poorly. I feel really tired and sick at times but I think this is a mixture of cancer, Tarceva and morphine. I wish you and your family all the best. Live for today and make every moment count.

    Regards. Rob..... x

  • Rob

    Thank you for sharing the good advice. I hope you are keeping well and that you have found tarceva manageable. Glad to hear your breathing is better but not so great news on the mets. Hopefully the radiotherapy treatment will assist with this. The Nurse Specialist may be able to offer additional suggestions in terms of pain management.

    I hope you and your family are coping with the difficult situation you find yourself in and that you are getting as much support as you need.

    Best wishes

    Lorraine

    on behalf of the Information & Support team

  • Hi Ayah .. couldnt believe it when I read the title of your post. Ive been asking myself this question fir the last 3 weeks.

    im 45 and was diagnosed with advanced terminal lung cancer on 31st October.

    i dont think ive ever been healthier.

    What is happening on the inside is definately not manifesting on the outside.

    I have had two weeks of chemo therapy which has already even reversed somewhat my one and only sympton (a husky voice).

    I keep expecting Jeremy Beadle to jump out and tell me its all been a huge joke.

    i just cannot believe im really this ill.

    all its very very odd.

  • Dear Ayah my wife 53 already a year exactly stage 4 with brain mets and she's well with no symptoms at al.

    but we know deep inside it could be a time bomb slowly fusing to explode. We hope and pray everyday for complete healing. We wont look at statistics but we are not in denial.

    Peter

  • Hi all

    My mum was diagnosed in Dec 2012 with Stage 4 Lung Cancer and bone mets she had radio to spine and Cistplatin/Pemetrexed and Carbo/pem Chemo 4 x made her quite ill, some small shrinkage then growth so she moved on to Tarceva which shrunk tumors to scar tissue and gave her life back she was very active, in march she had a scan which showed new mets in the Liver so she had a biopsy and has been moved to the Prof of Oncology to go on to a trial, after 8 weeks off Tarceva they have put her back on until she starts a trial and it seems to be improving the lung a bit. We are hoping to move to a drug called AZD9129 but she has to wait for a blood test to come back to see if she has a gene called TC790 first if not we will start another trial. There is so much out there at the moment so we remain very positive, although she is struggling a little with the current progression and the pain we continue to love and laugh, Good Luck all

    x

  • hello ayah i have stage four lung cancer and sometimes i think theyve made a mistake i have no pain am putting on weight apart like you say feeling tired i also put that down to chemo i look as if theres nothing wrong with me.

  • So sorry to hear about ur mum but from my experience with my mum 2 months ago yes u cud luk n b as healthy as a fiddle on the outside my mum had lung cancer no 1 new uno a week b4 it literally just tuk ova her body she must of had it for years it's spreaded 2 her liver n throat that's a stage 4 lung cancer wen it spreads from 1 part of the body 2 anuva my mum was diagnosed wiv it on a Tuesday came home from hospital on that Fri n past on the Monday after but wot baffles me is that they sent her home wiv just paracetamol :-/ I don't get it n still haven't got my answers till this day buy the answer 2 ur question is yes they can act n luk so normal xx

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