Been a little while since I posted. Latest CT scan shows resolution of all lung nodules and adenocarcinoma-involved lymph nodes. Only a couple of areas on the spine to watch. After almost a year of different therapies ranging from chemo-radiation to failed immunization therapy and back to chemo, I am guardedly looking at being close to pushing the longevity odds in a good direction.
I found the latest chemo regimen of carboplatin/ pemetrexed to be especially difficult. Anemia is nothing to make light of. I hope my future pemetrexed maintenance therapy won't be as difficult.
So, even if you are like me, without any known actionable mutations and a PDL1 factor of only 5%, the standard fallback treatments might just help anyway.
I'm thinking it would be great to live beyond this COVID-19 era.
Always the best to you all.
R
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rdflynnjr
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Congratulations. You’ve had quite a year and it’s wonderful to know you’re moving forward. Sending hope we get through to the other side of this pandemic.
thats great news I to have no mutations and a PDL1 of 1% so this is very encouraging, I am also currently on my 3rd cycle out of 4 of carboplatin and premetrexed and have found the tiredness a struggle aswell.
Great news and even better attitude. I had that doublet chemo as my first line treatment in 2015. I was on Alimta (pemetrexed) maintainance for about 4 years. It’s so much more easy to tolerate than the carboplatin plus Pemetrexed. I got into a routine where I just literally blocked it on my calendar; Monday treatment, Thursday all day recovery on the couch. Eventually recovery took more time-I would feel decent monday and Tuesday, and then spent Wednesday through Friday doing little to nothing. But that was after a long time on that chemo. Fatigue and swelling were the biggest issues. I hope you find it to be bearable. Take care
Congratulations and thank you for the post. Sharing your story gives others hope.
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