I’m new here. My husband was diagnosed with Stage IV lung cancer in June 2017. It had already spread to his liver cap & brain by the time it was found. None of the classic symptoms I’ve read about would have described him. He went to the ER with what he thought was gallstone pain. The ER doctor was suspicious, they weren’t busy - so he ordered a chest CT. Within hours he had his diagnosis. The main tumour was almost 10cm. The next morning it was also found in his brain and liver. Since then he’s had radiation and gamma knife surgery. He is still on chemo. He was doing ok. He had a Ct of the chest that shows a lot of damage from the radiation. This is making it hard to determine if the main tumour has actually shrunk. The latest brain MRI shows that only one lesion remains, and it’s tiny. Originally there were four.
What is hard for me lately is seeing that he is suffering from much more pain recently. I can handle him sleeping all day long. But the pain he’s experiencing is breaking my heart. Along with the pain he has hand tremors. The scariest thing is that he is also now become very confused, he wanders around the house, and will hallucinate. We have a nine year old daughter and it’s so scary for her to witness. I’m so scared right now. Of course I went to Dr. Google and he scared me even more. We have a doctor appointment in three days. I need to know what this pain is so I can help him! Right now he’s just having the pemetrexed chemo every three weeks. He takes 15mg hydromorphone three times a day and 200mg of gabapentin four times a day. Then the breakthrough hydromorphone as needed. Has anyone else experienced these types of symptoms? I’m just really scared I’m going to lose him soon. Thank you for reading and listening. ❤️