Update - treatment plan after WBR

[Ina3]

Hi everyone,

Just wanted to give u an update. My dad finished 10 sessions of WBR this week. He is still feel weak and numb on his feet. Hope it will get better. PET results came and looks like everything else looks good. Tumor in lungs shrunk again. Yee. 🙏🏼 So at this point he will continue Keytruda and add Avastin 900 mg every 6 weeks. They did not add anything else. I worry a little bit, yes, Keytruda has been doing a great job controlling the lung tumor progression but it still sneaked up to brain in MLD form, so just adding Avastin would help? What are other options realistically in this case? We are planning to do liquid biopsy soon to see if there are any new mutations. Our doctor also agreed To take Silibinin.

[rdflynnjr]

Hi Ina3,

Great that the tumors are shrinking. Let's hope that trend continues.

I'll let more knowledgeable folks address your questions

Rick

[Denzie Moderator Volunteer]

Avastin will cross the blood brain barrier to prevent a tumor cell from taking hold and establishing a blood supply to feed it. This is a really good treatment plan.

I’m grateful to read that the lung lesions are still shrinking. Leptomeningal Disease can be tricky to treat. I send hope for a good out come.

[Ina3 in reply to Denzie]

Dear Denzie,

Has anyone added any of these chemo pills to the regiment? Xelota, Temozolomide, Packitaxel.

My dad’s doctor for his LMD suggested to take any of these pills. Based on my reading there are good results when its taken by patients with LMD and breast cancer. Was there any study for Lung cancer? Which of these three would work better for NCSLC? Xelota, Temozolomide, Packitaxel.

[Denzie Moderator Volunteer in reply to Ina3]

Wow! I’m glad to know you have three (!!!!) options. Unfortunately, I do not know enough about any of these to be able to make a good recommendation. The Go2 Foundation that sponsors this message board has several experienced researchers on staff. Consider giving them a call.

go2foundation.org

800.298.2436