new nodule found one year after lobectomy - Lung Cancer Support

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new nodule found one year after lobectomy

judy6181 profile image
18 Replies

One year ago in a weird incident of Tachycardia (caused by dehydration) following a bout of intestinal virus, I was given a x-ray of my heart to rule out other heart issues. My heart was fine, but nodules were found in my lungs. Long story made shorter, a upper left lobectomy caused by a small 22 mm adenocarcinoma stage1b. Everything else looked great. Surgery was at Mayo Clinic and I was out the next day. Some pain but manageable. Required oxygen at night and while exercising for 4-6 weeks. No chemo. Was feeling pretty well be my 1 year scan. Now swimming 3/4 to a mile a week, and walking my dog. Able to walk several miles taking grandchildren to zoo (tho not fast). So feeling very lucky that I escaped so easy. But scan shows an 8mm nodulein my remaining left lobe. They will rescan in 4 months, but this is depressing. Recurrence or second primary, I really doubt that benign nodule is likely. Just sharing because my kids don't want to talk about it and I don't have many friends here in Minnesota to bore with my angst.

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18 Replies
SusieJo1948 profile image
SusieJo1948

Welcome. I am sorry they found another nodule. Hopefully they can take care of it.I and all of us. On here will be here for you. If need us praying for you. Susiejo1948

judy6181 profile image
judy6181 in reply toSusieJo1948

Thank you its nice to have support. How are you?

judg69 profile image
judg69

Hi Judy, keep on truckin’. Six years cancer free, and bingo , small nodule found in top left lobe (top right lobe removed 6 years ago). Scan scheduled in 3 months to determine if any growth. Never give up, and Never give in! Stay the course Judy. Best Wishes, judg69

judy6181 profile image
judy6181 in reply tojudg69

The Grateful Dead give good advice :) so truck I will.

thanks

SusieJo1948 profile image
SusieJo1948

Judy thank you i will support you any way i can. I,m here because i had stage3 lung cancer. i didn,t do radiation but did 6 months chemo i,m here to give everyone hope i,m a 5+ years lung cancer survior. Also they took my upper left lung. i tell everyone don,t give up keep fighting there is definitly hope. If you need to rant or cry or whatever i,m here. So are all these good people who will be here for you. Don,t stay away we would like to here from you. susiejo1948

anrean profile image
anrean

Welcome Judy! You will find that we are a diverse group and very supportive of one another on this journey. So very sorry to hear that you are possibly going through cancer again - it is not an easy thing to accept. I'm on my 5th primary in 15 years, all of them different. Please feel free to stay in touch and share your feelings with the group; you will find that many of us have gone through what you are going through now. It is good to hear that you worked hard to recover. Praying that this nodule is benign. Please be sure to keep us informed!

Ruthie1950 profile image
Ruthie1950

I’m sorry to hear you’re going through this. You sound like a very strong person so try to keep a positive outlook. I pray your nodule is benign.

Memaw0100 profile image
Memaw0100

This is a great place to share your story. Only people that have or are going through what you are can truly relate to your fear and disappointment. I have been a caregiver to my Mom and now a patient, i can relate to your family. Im sure there were times I came across as not supportive. It's hard to hear someone you love is going through this. Sometimes, if you ignore it, it isn't real. Like I said, there is always someone hear to lift you up, encourage you, pray for you, whatever you need. Good luck and God bless!

FtB_Peggy profile image
FtB_Peggy

Welcome, Judy. So sorry to hear that you are in that place of waiting and dreading...this is really tough stuff. Please keep talking to us, we sincerely want to help.

tzfarr profile image
tzfarr in reply toFtB_Peggy

I too had upper right lobectomy in 2016, adenocarcinoma stage 1b. Two miniscule nodules appeared in left lower lobe and right middle lobe, they have double in size to 4mm sinve last six month CT scan. My LDH is at the highest it has ever been....I am not a Dr. but when something is growing, I get concerned and when my bloodwork reflects change, I am not a fan of waiting....I am thinking of going to the Cancer Care Alliance in Seattle for a second opinion....they are the best in Washington.....prayers you get relief and nodules stabilize, keep on Trucking!!!

JeanE41 profile image
JeanE41

Welcome Judy. As you can see from the other replies, we are a diverse group and very supportive of each other. I, too, am playing a waiting game with a small nodule in the remaining lobe of my left lung. The lobectomy was in 2015. It's so difficult not knowing what is growing inside us. My nodule is 10 mms and has been watched for a year. It is in a position that makes a needle biopsy ill advised, so we wait.

I hope you find out soon what you are dealing with. There are so many new treatments out there as well as being developed now. I try to keep my brain busy during the day, but nights are the most difficult. Find something that you enjoy to keep yourself from constantly thinking about your situation. We will overcome this.

Your neighbor in Wisconsin Jean

ElmerFudd314 profile image
ElmerFudd314

Judy I'm a 69 year old dude with nsc lung cancer. This was only diagnosed in November 2017. So far I've had radiation to the head and 5 chemos. Read my previous posts for some helpful tips on how to manage chemo side effects . Just been hanging out here in MN, also known as The Ice Planet Hoth.

judy6181 profile image
judy6181

Dear Elmer, As a 67 year old with nsc lung cancer I heartily approve of your suggestions. I'd inquire where in the frozen north you domicile, but haven't figured out private messaging here.

Denzie profile image
DenzieModeratorVolunteer

Welcome, indeed! If you’re in the Twin Cities area there is a Gildas Club and you can participial a Living With Cancer Group there. You’ll find that a wonderful experience.

gildasclubtwincities.org/

There is another organization that will set you up with a Phine Buddy with similar diagnosis and age if you can’t get to Gildas Club. It’s at the lungcanceralliance.org. Please know they don’t have patient boards like this.

FtB_Peggy profile image
FtB_Peggy

Hi again, Judy,

We partner with the Cancer Hope Network to offer a free peer-to-peer matching service. If you would like to use that, just go to: freetobreathe.org/lung-canc... and scroll down to: Get Matched with a Lung Cancer Survivor or Caregiver. Good luck!

Keneki123 profile image
Keneki123

Prayers thoughts and positiveness is sent to you today

JRuthI1946 profile image
JRuthI1946

Feel free to lay it all out on the table. Good listeners here

lespa profile image
lespa

Judy, I had stage 1b adenocarcinoma of upper left lobe of lung. It was 5 cm in diameter and they performed a lobectomy and chemo after that. It has been 3 years and now they are watching another nodule they detected 2 years ago and so far so good, Hold your head up high Judy! Stay strong! We are here for you.

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