Does anyone in this group also have osteoporosis? I have severe osteoporosis which needs to be treated (spine T-score -3.7) and could not tolerate bisphosphonates due to horrendous side effects. I have been offered twice yearly injections of Prolia (denosumab). However, one of the side effects is cellulitis in the lower leg (not the injection site which is normally the abdomen) which as I have lymphoedema is obviously a red flag for me. The only other drug I can take is Strontium Ranelate which has serious side effects. Does anyone have any experience of this or advice?
Thank you
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1965Katy
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Oh dear that's complicated. I have mild osteoporosis and am on alendronic acid which took me a week or two to get used to, so I am sorry you can't due to side effects. It's awful that sometimes the side effects are worse than the condition!
Thank you. Yes I have spoken to them, and they say it's a very difficult decision. They suggested writing down the pros and cons of both. I have and I still can't decide!
I have severe osteoporosis diagnosed 5 years ago & have Lymphodema in my left leg. I couldn't tolerate biphosphonates either and have been treated with twice annual denosumab for the last 4 years with no problems at all. My osteoporosis has improved, but it was decided after the 3 year review to extend my treatment for a further 3 years. I'm half way through that course now and I've had no side effects and especially no cellulitis. I manage my calcium intake through diet as the calcium tablets upset my tummy too!
Hope you respond well to the treatment, and that you stay well throughout.
Thank you for sharing your experience, that is really encouraging and helpful. You are so fortunate not to have any side effects on Prolia. I know it's a very effective drug if it agrees with you and you can take it for many years. Have you discussed with your doctor what you are you going to take when you come off it if you can't tolerate bisphosponates to prevent rebound fractures? My body seems to react so badly to drugs and I am frightened of an injection that stays in your body for 6 months. At least with Srontium Ranelate you are in control taking a sachet everyday so you can stop if it doesn't agree with you. However it can have very serious side effects. I have to make a decision, it's so difficult!
I had the same worries and discussed it with my GP before deciding on the denosumab. I certainly don't regret my choice. There is no plan for after denosumab because I could potentially continue with this indefinitely, though it's expected to have been effective enough by the end of this treatment. I've taken a small fall recently and no broken bone too! Denosumab has definitely been good for me 😊I hope you manage to make your decision soon.
Vitamin K helps support a special protein that helps promote healthy bone structure.
Low vitamin K status is associated with decreased bone mineral density and increased risk of fracture.
Vitamin K also reduces activity of bone-resorbing cells by decreasing levels of inflammation regulating complexes.
Collagen provides essential tensile strength to bones.
A collagen calcium chelate was developed and has been shown to improve bone mineral density and femur bone strength.
For decades, doctors in Japan have been using high doses of vitamin K2 as a prescription drug to prevent bone loss and protect against fractures.
It is now available in the U.S. without a prescription.
Clinical trials have demonstrated that 45 mg of vitamin K2 (menaquinone-4) helps to:
Slow bone loss,
Reduce fracture risk, and
Build new bone.
My wife is a 69 year old PT diagnosed with osteoporosis years before we met.
She was over three years underutilizing the protocol listed on the link below using zero Rx medication but still actually gained bone mass, & mineral density.
In the last few months she has decided to follow the directions on the labels that are all based on peer reviewed science, following a more thorough study on her own, of the protocol & the new 45 mg K2.
Weight bearing exercise helps as long as it is safe & she uses Tai Chi for Arthritis developed by Dr. Paul Lamb.
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Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
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