I’m new here. I was recently diagnosed with a mild case of lymphedema in my left leg. I went to the doctor with a swollen ankle months ago and was initially dismissed but I knew something was wrong when the swelling did not go away after several months. I was referred for a second opinion (I got the impression that the GP had no idea about lymphedema) and that’s when lymphedema was diagnosed.
At the moment it is very mild and it is only in my ankle and lower leg. I was told by the doctor not to worry about it and that they have no reason to think that it will get any worse. They said the best thing to do is to exercise so I am swimming twice a week and doing Pilates (swimming seems to help quite a lot). They said that I can wear a support stocking but only if I want and when I can (!) and that I don’t need to be specially fitted and recommended buying some from M&S (which I’ve done and have started wearing).
I am concerned because even though I have been told not to worry about this I have read that lymphedema is always progressive. Looking back on photos from my childhood and growing up it is obvious when looking that my left leg (ankle and lower leg area only) has always been slightly bigger than the right. Should I be reassured by this? Grateful for any insight!