Hi all, I've just found this site.
I have lymphedema in both feet/lower legs. Its not too bad, gets bigger in summer / hot weather or after prolonged standing, but isn’t too dreadful
Im not sure if it is primary or secondary...
I am 50 years old, I twisted or sprained one ankle when I was about 13 and that triggered lymphedema in one leg. I then bashed the back of my heel very hard into a table when I was about 24 and that made my other foot/leg swell up.
I see an NHS lymphedema nurse twice a year, she keeps an eye on it for me and gets me medical support stockings ... I've just heard about microsurgery and will likely go to Oxford for the £650 assessment.... but I expect I will be told I'm not suitable...If it was always to stay as it is now I probably wouldn't consider surgery (as £15,800 is a lot of money!) but the thought of it suddenly worsening scares me and if I could prevent this, then remortgaging it is! Thanks! Trish