Lymphedema pump: Hi friends! My left leg lymphedema has... - LSN

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Lymphedema pump

GabbiD
GabbiD

Hi friends!

My left leg lymphedema has been struggling as late even with my custom compression socks. My doctor is suggesting a pump that would take 2 hours at night but she thinks it would help alot. Anyone have one?

Also as of now my lymphedema is just to my knee. Lately I feel heavier in my thigh. But I put on 10 lbs during quarantine. So I am not sure which can be blamed for the heaviness. How will I know?

Thanks in advance!

14 Replies
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Hi, I have been in the same boat with my leg getting bigger. I didn’t want my right leg to get any bigger and to get it softer. I only last month bit the bullet and purchased a Haddenham lymphflow Advanced. I asked for a refurbed pump which enabled me to get it cheaper! It wasn’t cheap but when you think each hour of MLD could be anything upwards of £55, it will soon pay for itself by putting it on at home in the evenings. The longest program takes 1 hour and it really has made a huge difference. If you are able, don’t hesitate to buy one, but make sure you use it as regularly as you can. I use mine at least 4 times a week. Good luck

GabbiD
GabbiD in reply to Juliawoods

Thank you! This is great feedback!

Sbluebam
Sbluebam in reply to Juliawoods

Hi Julia ,

Where can I buy one if these pumps please ?

Juliawoods
Juliawoods in reply to Sbluebam

I bought mine directly from Haddenham. Ask for a refurbished one if possible. There is nothing whatsoever wrong with it - still comes with a guarantee. Just purchase a new blowie-up sleeve for your leg or arm. I purchased one with a waist attachment to enable the full MLD experience.

Sbluebam
Sbluebam in reply to Juliawoods

Thanks for info Julia .. how much is the machine roughly ?

Barbara x

Juliawoods
Juliawoods in reply to Sbluebam

All including full leg sleeve no vat as we are exempt! £1935

GabbiD
GabbiD in reply to Juliawoods

Wow. I will have to pay but I have medical money taken out of my paycheck pre tax. It lowers mybtaxable income and makes it easier to afford medical expenses. I will look onto it.

Gabbi, I worked out that at £65 an hour for MLD, that’s only 29 treatments, even if you only use it twice a week it would pay for itself in less than 6 months! And once you have one you could use it every day and get even more benefit! Woman’s logic maybe but .....just saying!

GabbiD
GabbiD in reply to Juliawoods

Great thinking. That is what my doctor was saying compared to paying for lymphatic massage from a clinician.

I am going to borrow one from clinic but sure how long for..but I think they expensive to buy but if they work would be a good investment

GabbiD
GabbiD in reply to bulldogbyrne

Its a good idea to borrow one. To see ifnit works AND if I can be compliant....

Hi, in terms of how you might know what to blame for your heaviness sorry but I guess the answer has to be to try and lose the weight you gained during quarantine - if possible.

I have trialled a compression pump and I didn't feel it was achieving more than the daily simple lymphatic drainage (SLD) massage I do on myself. My lymphoedema nurse said that the pumps work for some people but not others - would be good if you can trial one before you buy.

I've had secondary lymphoedema in one leg/foot for about 3.5 years and the best thing so far, for me, has been a custom made flat knit stocking - circular knit stockings are too stretchy to keep my swelling at bay.

Best Wishes

I have one here in canada. I paid $ 7000 can in purchased on italy. Used 300 hours will sell for $3000 cdn

Looks like you’re in the US. look into the Flexitouch system by Ta tile Medical. The Flexitouch Plus and LymphaPress are the US market leaders in LE pumps and they are both covered by most insurance co. The Haddenham system referred to by others above isn’t sold in the US (this is a UK site) Tactile Medical sells refurbished pumps and you can rent one to trial it. some Lymphies like pumps others don’t You do need to prepare before using a pump by doing SLD to open open the pathways so that the lymph drawn up from your kegs can drain effectively. Ask your CLT to show you how

tactilemedical.com/

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