LVA plus lymph node transfer - shall I start a vlog?

[Browsfordaysss]

Hello! I had cervical cancer about 8 years ago and lymph nodes removed as part of my treatment. I developed lympodema in both legs about 3-4 years ago (mild to moderate I'd say), particularly in my left foot and ankle. The Oxford clinic have offered me a bit of a mixed surgery option - LVA in both legs, and a lymph nodes transfer from my neck to my groin to treat the lympodema in my left leg which is borderline unsuitable for LVA on it's own (the scan showed the dye pooling in my foot unfortunately). It's a bigger op than the LVA alone, and quite a bit more expensive but I think I'm going to have to go for it. I'm only 34 and want to do everything I can to improve my situation with my legs.

Has anyone had this done?

I think I might start a video blog as I wish there was more information out there but not sure anyone would watch it!

[lymphite]

I hope you do. I have had LVA for arm LE after breast cancer and I have had fantastic results. I still had many functioning lymph vessels which the doctors at Oxforld say means it is still “early”. Their definition is based on disease progression not time because they say the two don;t always correlate. I feel the information of how wonderful this can be isn’t out there enough. I live in the US but I obtained most of my information from the Oxford website and twitter posts.

My inclination now is to get on with my life. I feel I have resolved this lymphedema thing and it is controlled and stable. But then I remember how desperate for information I was when I was Looking into this surgery and I want to help others in the position I was in. At that time I wondered if it was a useless surgery because there wasn’t anyplace where I could hear the voices of people who tried it.

[Lymphhelp]

Hi, I live in the states and have had lymphedema since the age of 12. It’s genetic and it’s called primary lymphedema. I am very interested in your Surgery’s and the outcome. The doctors in the United States don’t seem to be very knowledgeable about the type of lymphedema I have. It’s not from surgeries or cancer. But with every year they get a little worse. I wear 30 to 40 pressure stockings every day. I can only pray That this is something that might be useful for me and my family. Please keep me posted.If there’s anybody else out there with congenital primary lymphedema and had had surgery please respond and tell me about your surgery and progress.