LVA Surgery with Dr. Wei Chen: I have had two LVA... - LSN

LSN
4,360 members2,072 posts

LVA Surgery with Dr. Wei Chen

Cervivor1974
Cervivor1974
14 Replies

I have had two LVA (Lymphedema) surgeries with Dr. Wei Chen at the University of Iowa the past year (one 12/21 and one 6/13). He has helped me immensely. The work he has done on me and his findings with others similar to me will be included in a medical journal soon. I am early stages and even diagnostic tests said I didn’t have Lymphedema but surgery showed I have it in both legs. He is an amazing dr and I love his staff. Very kind and passionate about helping sufferers of Lymphedema.

Just wanted to let people know he is able to help many. It’s tricky with insurance and isn't cheap without insurance but please let me know if you questions. Very minimal pain and it has changed my life. He is doing cutting edge work in the field of Lymphedema surgeries. I am a 14 year survivor of Adeno Cervical Cancer (44 lymph nodes removed), radical hysterectomy, and radiation. I use compression stockings, do physical therapy, as well as a Flexitouch (nightly pump) machine. There is hope. <3

#CervivorAmbassador

#Cervivor

14 Replies
oldestnewest
Lynora

Congratulations Cervivor1974! Have you put this post on any US based fora? I'm sure many people your side of the pond would be interested in your results.

Reply
CCT67

Good to hear your positive results! While LVA is not a viable surgery for many lymphies (particularly Primary cases), many like you have good results. Sadly for some LVA has no notable effect on their symptoms (I have 2 lymphie friends with Secondary arm lymphies who are heart broken as they haven’t benefitted from LVA). When it works it’s life changing like it has been for you :-) Dr Chen is one of several surgeons who started doing LVA in the US after training with surgeons abroad where it originated (LVA was developed by.a Japanese surgeon). Hope you continue feeling the positive results for the long term!

1 like
Reply
sharon1234
sharon1234
in reply to CCT67

I have the same cervical cancer and I have now swollen legs with lymph with lymphedema... what is LVA? X

Reply
sharon1234

Should say had.... it was 17 years ago now

Reply
Cervivor1974

Not sure this will open (not from Dr. Chen’s Hospital)

lymphedemasurgeon.com/lymph...

Here are some explanations. Dr. Chen is known for doing more with less and having a very perfected version of the surgery. He is a wonderful surgeon and a caring doctor. Sharon, it would be great if you could find a doctor that does these procedures and get a consult to see if you would be eligible for the surgery and if your insurance would be willing to pay for it. I’m sorry you are suffering. Cervical cancer does this to so many of us.

Reply
Cervivor1974

Here is another article about Dr. Chen:

uihc.org/patient-stories/in...

Reply
Cervivor1974
Reply
CCT67
CCT67
in reply to Cervivor1974

Hi Sharon, As you are in the UK check out Oxford Lymphoedema Practice. Professor Furniss and Mr Ramsden perform all the current lymphatic surgeries (LVA, SAPL, LNT) and their website explains these ops. Call the practice for further info, they’re happy to answer queries. I’ve met the surgical team during my screening for LVA 4 years ago, they’re top notch. Sadly, the ops are not available on the NHS except in clinical trials x

Here’s the link to Oxford Lymphedema practice

olp.surgery

1 like
Reply
CCT67
CCT67
in reply to sharon1234

Hi Sharon, As you are in the UK check out Oxford Lymphoedema Practice. Professor Furniss and Mr Ramsden perform all the current lymphatic surgeries (LVA, SAPL, LNT) and their website explains these ops. Call the practice for further info, they’re happy to answer queries. I’ve met the surgical team during my screening for LVA 4 years ago, they’re top notch. Sadly, the ops are not available on the NHS except in clinical trials x

Here’s the link to Oxford Lymphedema practice

olp.surgery/

1 like
Reply
BRachel

So happy to hear that things have been so successful for you! I have a consult with Dr Chen in November. I am wondering if you had any abdominal swelling and if it helped with that also?

Also wondering if you happen to have a hotel or transportation recommendations. I am flying in from Alaska for the consult.

Reply
purpledancer444

Dear cervical cancer survivor, me too, a cervical cancer survivor... 12 years ago, chemo radiation, 47 lymph nodes removed, lymphedema in right leg only. Is there any chance in heaven that LVA can be affordable, or covered by medical insurance? Does your surgeon accept cash?

Reply

You may also like...