Good afternoon MicroSurgeon
I was diagnosed with Lipo-Lymphoedema approximately 4 years ago after battling for at least 10 years and watching my mother suffer for decades before that.
I am 47 years of age and used to have legs I could be proud of.
Spent years going to the GP to be told that it was water retention, just obesity, etc. Am sure you’ve heard them all. Eventually took matters into my own hands and went delving through the internet for about 3 weeks to find as much information as I could to determine what I was suffering with. Found the answer – Lymphoedema.
Printed out about an inch’s worth of info and sent to GP who concurred that I had self-diagnosed correct and then promptly referred me to my local Lymphoedema Clinic in Milton Keynes. At the same time, I had already booked to complete a 4-day trek to Maccu Picchu in Peru (which I did do in the end and immensely proud of given the condition). Not sure if my knees have ever been the same since, though.
Then found out via MLD & Compression bandaging that I was actually suffering with bilateral lipoedema and primary lymphoedema. Have tried the compression tights for two years and gave up on them, I’m afraid. They would pinch around my ankles and my knees and be absolutely unbearable to wear.
I continue to have Lymphatic Drainage Massage via a clinic local to me about every 6 months to a year which at least keeps the restlessness and the pain (reasonably) at bay. I have noticed that my arms have now joined the party (I believe that this is partially due to the injections I had to have to do the trek in Peru and partially due to the condition itself).
Add to this the fact that I am also in my 2nd year of menopause and I can feel that my self-esteem is starting to drop.
What I wanted to ask is whether or not your treatment covers both conditions (Lipoedema and Lymphoedema) and how I can go about getting referred.
I would also be interested in the costs of getting this done and whether you are covered by Health Shield who I am a member of via my employer.
Many thanks for your time.