Ten days to watch, wait, worry? Campaign launch

[HAIRBEAR_UK]

A week on Monday, Please join our Watch Wait Worry campaign and help us to improve the support offered to patients on Watch and Wait.

We want to see more patients living well on Watch and Wait by improving the supportive care patients are receiving and ensuring they are being signposted to further information.

On April 16th, at the British Society of Haematology conference we will be launching our report and recommendations drawn from the experience of 763 people diagnosed with CLL and living on Watch and Wait. This will be accompanied with a patient guide; “Living Well with Watch and Wait”. The guide uses the experiences of CLL patients to signpost towards resources that can help you live well during Watch and Wait.

Read more: leukaemiacare.org.uk/get-in...

On the 16th check in again to download the report and patient guide; you can also help others by sharing with your doctors..

During the campaign and coming months Leukaemia Care will be working with the UK clinical community and patient groups supporting blood cancer patients living on Watch and Wait, The outcome we hope, will be creation and implementation of improved clinical supportive care guidance for the Watch and Wait group.

Thank you everyone who has shared their experience

Nick

[Hidden]

Total agree with campaign. If you know that you can talk to someone about how you feel it allows you to slowly get your head around the diagnosis.

[Marie_14]

Well done LC! You are so right about educating doctors!! Hope that includes Haematologists too? Some really need it. Maybe a talk on how to communicate with patients and observe their wishes too?

Marie

[DrunkJam_UK Administrator]

This is really important. Watch and Wait is so stressful. We are lucky, the drs we have seen have been helpful, and knowledgeable (i.e., able to answer additional questions, and fit in appointments etc, when maybe a person without leukaemia might need simple antibiotics, or not really need a dr) They have always reassured that we are doing the right thing, not seeing them too often, and so on, but, we know that we are lucky, since, my husbands GP has a special interest in CLL, and mine knows I have my own health issues that mean it is useful to take some time to address any concerns.