Posts - JIA-at-NRAS | HealthUnlocked

JIA-at-NRAS

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This Week is JIA Awareness Week!

This week is JIA Awareness Week and we are raising awareness of what it is like to live with Juvenile Idiopathic Arthritis by sharing across our social media...

This week is JIA Awareness Week and we are raising awareness of what it is like ...

Partner•4 months ago

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New Physical Therapy Opportunity - Gloucestershire

An amazing small local charity, CALM (Children Achieving Lifelong Movement), based in Bourton-on-the-Water, Gloucestershire, with which we have close links,...

An amazing small local charity, CALM (Children Achieving Lifelong Movement), bas...

Partner•5 months ago

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Bullying at secondary school affecting sons treatment

Hi My son is struggling at school again, his ‘mates’ bully him they are all ASD but access mainstream secondary with support. Hes on week 7 of Benepali...

Hi My son is struggling at school again, his ‘mates’ bully him they are all ASD...

•7 months ago

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Have your say! Surveys now open collecting views on the services and quality of care provided to children and young people with JIA.

The National Confidential Enquiry into Patient Outcome and Death (NCEPOD) are currently undertaking a study to look at quality of care in children and young...

The National Confidential Enquiry into Patient Outcome and Death (NCEPOD) are cu...

Partner•7 months ago

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Wear Purple for JIA: Friday 24th May

Wear Purple is our annual campaign dedicated to raising awareness and NRAS funds for the benefit of those living with JIA 💜. This year it will he held on...

Wear Purple is our annual campaign dedicated to raising awareness and NRAS funds...

Partner•7 months ago

Intro

Hi. I've been on HealthUnlocked for some time now and for some reason, my profile states I've not introduced myself. I've written a bio within my profile...

Hi. I've been on HealthUnlocked for some time now and for some reason, my profil...

•7 months ago

question about Methotrexate

Hi, everyone! My 4 years old son was diagnosed with JIA in 2023. it’s a big change to our family. We’ve been through a lot of emotions. We have been doing a...

Hi, everyone! My 4 years old son was diagnosed with JIA in 2023. it’s a big c...

•9 months ago

epiphysiodesis ( surgery about femur shortening)

Hello, I have JIA since birth (got diagnosed at 6+ months). My one leg is shorter than other one and is making my hips, spine its unevenly ( i do have...

Hello, I have JIA since birth (got diagnosed at 6+ months). My one leg is shorte...

•9 months ago

Anyone diagnosed with JIA/Rheumatoid Arthritis in the 70s??

I attended Taplow hospital when I was diagnosed in 1974. I am wondering if anyone else here went there and how you are now. I was 13 years old at the time and...

I attended Taplow hospital when I was diagnosed in 1974. I am wondering if anyo...

•9 months ago

Opportunities for 2024!

Good morning everyone and Happy New Year! We are delighted to announce new opportunities for 2024 at JIA-at- NRAS to support the work we do for those...

Good morning everyone and Happy New Year! We are delighted to announce new opp...

Partner•11 months ago

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Haven't had a chance to complete our first ever NRAS Census?

Then now's the time! We are reaching out to you, our community in as many ways as possible to ask a series of anonymous questions. It will help us to better...

Then now's the time! We are reaching out to you, our community in as many ways a...

•1 year ago

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Measles resurgence: Is it a cause for concern?

Recent headlines have highlighted concerns of a resurgence in measles cases across the UK and especially in London. We asked our paediatric medical advisor, Dr...

Recent headlines have highlighted concerns of a resurgence in measles cases acro...

•1 year ago

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Who does NRAS reach? That is the question we want to know the answer to! 📋🤔💭

For our first ever NRAS Census we are reaching out to you, our community in as many ways as possible to ask a series of anonymous questions. It will help us to...

For our first ever NRAS Census we are reaching out to you, our community in as m...

•1 year ago

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Mental Health in JIA Survey Collaboration

We are so proud to have been involved in this important project to examine the impact on mental health of children, young people and families living with a JIA...

We are so proud to have been involved in this important project to examine the i...

Partner•1 year ago

Would you like to tell your JIA story?

Could you spare a few minutes to tell your JIA story and help researchers understand what is important to you? The Cluster Consortium are looking for...

Could you spare a few minutes to tell your JIA story and help researchers under...

Partner•1 year ago

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JIA Paediatric Survey Opportunity

Researchers at the University of Manchester are inviting parents and carers of a child diagnosed with JIA to share their experiences of the diagnosis by...

Researchers at the University of Manchester are inviting parents and carers of a...

Partner•1 year ago

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Important info relating to Free School Flu Vaccine Programme for children and young people

The government has released a bulletin offering secondary school pupils a free flu vaccine at school from 1st September. Please note the following: All...

The government has released a bulletin offering secondary school pupils a free f...

Partner•1 year ago

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JIA Awareness Week 3rd - 7th July

Morning Everyone. Today is the first day of JIA Awareness week (Juvenile Idiopathic Arthritis).4 Please keep an eye out on social media for JIA Awareness...

Morning Everyone. Today is the first day of JIA Awareness week (Juvenile Idiopa...

•1 year ago

JIA community

Hello, I am a mum to a daughter who was diagnosed with Juvenile Idiopathic Arthritis last year at the age of 8. It has been a very difficult year but we are in...

Hello, I am a mum to a daughter who was diagnosed with Juvenile Idiopathic Arthr...

•1 year ago

JIA at 13

Hi all, I was diagnosed at 13 in September 2002 with JIA which is now full blown Rheumatoid Arthritis. As a teen diagnosed with this was tough so happy to give...

Hi all, I was diagnosed at 13 in September 2002 with JIA which is now full blown...

•1 year ago

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Play the #JIAMythBuster Quiz!

Time to debunk myths about Juvenile Idiopathic Arthritis! 💪💥 Join us in #BustingJIAMyths and raising awareness about JIA. Let’s educate, support, and break...

Time to debunk myths about Juvenile Idiopathic Arthritis! 💪💥 Join us in #Busti...

Partner•1 year ago

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Online Wellbeing Webinar- 22nd June '23

This webinar is a collaborative project involving: JIA-at-NRAS, Versus Arthritis, CCAA , JAR, Lupus UK and SNAC. Last year, this group of UK rheumatology...

This webinar is a collaborative project involving: JIA-at-NRAS, Versus Arthrit...

Partner•1 year ago

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JIA Awareness Week 2023, 3rd- 7th July

Join us in spreading awareness and #BustingJIAMyths this year during JIA Awareness Week from 3rd-7th July 2023! 💙💪 Help us to dispel the myths around...

Join us in spreading awareness and #BustingJIAMyths this year during JIA Aware...

Partner•1 year ago

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Your Rheum - next face-to-face meeting: Saturday 17th June 2023

The next in- person Your Rheum meeting is to be held on Saturday 17th June 2023 from 1- 4pm, in London. Your Rheum is a group for 11-24 year olds across...

The next in- person Your Rheum meeting is to be held on Saturday 17th June 202...

Partner•2 years ago

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New: Health and Social Care Secretary statement on Covid-19 vaccination of at-risk children aged 6 months to 4 years

Following advice from the Joint Committee on Vaccination and Immunisation (JCVI) on Covid-19 vaccinations of at-risk children aged 6 months to 4 years, the...

Following advice from the Joint Committee on Vaccination and Immunisation (JCVI)...

Partner•2 years ago

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Inquiry into Musculoskeletal Health Inequalities

We want to hear your experiences of accessing support ARMA has launched the first ever national inquiry into inequalities in musculoskeletal* health. The...

We want to hear your experiences of accessing support ARMA has launched the fir...

•2 years ago

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JIA Parents Group

Don't forget to register for the JIA Parents meeting on Monday 6th March @ 7pm. A safe space to share stories with people who get it. Click here to...

Don't forget to register for the JIA Parents meeting on Monday 6th March @ 7pm. ...

•2 years ago

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JIA Parents Group

We'd love to know what you think about our online JIA Parents group. Whether you have or haven't attended any meetings, we would love to know your thoughts....

We'd love to know what you think about our online JIA Parents group. Whether you...

•2 years ago

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Opportunity for fully funded Physical Movement Therapy Sessions in North Cotswolds

An amazing local charity based in Bourton-on-the-Water, has 8 places available for fully funded physical movement therapy sessions which they would like to...

An amazing local charity based in Bourton-on-the-Water, has 8 places available f...

Partner•2 years ago

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JIA Awareness Week

This year the JIA Awareness Week is looking at the common misconceptions people have of JIA. I am wanting to know what are the most common comments you get...

This year the JIA Awareness Week is looking at the common misconceptions people ...

•2 years ago

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Which common misconceptions have you heard about JIA? #BustingJIAMyths

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