Effects of count dropping: My Revolade... - ITP Support Assoc...

ITP Support Association

4,086 members2,073 posts

Effects of count dropping

Millielottie profile image
4 Replies

My Revolade got stopped 3 weeks ago as count had gone to 451 and more risk of a bloodclot on drug with count above400.

My count has dropped now to 341 and I'm starting to get palpitations and short of breath. Quite an anxious feeling. Also much more tired but no bruising or bleeding.

Has anyone else with Itp had these feelings.

Written by
Millielottie profile image
Millielottie
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Gabriella28 profile image
Gabriella28

I have been on Revolade for over a year and sometimes feel tired but not anxious. The highest my count ever went (since diagnosis of ITP in February 2020) was 170. I was thrilled! I asked for the dose to be reduced from 75 to 50 mg/day because the drug was causing significant hair loss which I found distressing. So have been on 50 mg for about six months and feel ok but platelet count stubbornly steady around high 60’s /low 70’s. I am happy enough but really my ambition is to be drug-free. Unlikely at this low level but otherwise I feel ok. So try not to worry Millielottie x

Millielottie profile image
Millielottie in reply to Gabriella28

Just concerned that starting to feel like this after drug has been stopped but will raise it at my next consultation.

Thanks for replying x

Gabriella28 profile image
Gabriella28 in reply to Millielottie

I would have thought you would have to decrease the dose before coming off it completely? In other words come off it gradually

Millielottie profile image
Millielottie in reply to Gabriella28

Yes they did decrease to 50mg but the count was still escalating too high so they decided to stop it.

You may also like...

Drop in platelet count

Hi my daughter has had itp since 2012. She had lived quite safely on a very good count due to...

My platelet count has dropped after steroids, is this normal?

responded and my count went up to 238! Now my petechiae has come back along with bleeding gums and...

Does Flu and Colds makes the platelet count drops to low level?

hematoma and bleeding. ( my son is a bleeder his bleeding point is 10k and he bleeds a lot thru his

On romiplostin for 5 months. But it seems to work for a month and then count drops and needs increasing. Has anyone had similar experience?

my count seems to go up over a few weeks. Then it gradually drops again to 20 something so drugs...

Reasons for platelet drop

platelet count is less than 15k, and/or one starts bleeding everywhere. The doctor said that ITP...