Just a quick one (i hope!!) how long have people been having N plate injections? My situation is that after ITP showing its head again in September, I've been having N plate injections to control the level (had rituximab but failed after 3 years, and cant do steroids as body goes into melt down and give me steroid induced type 1 diabetes).
The N plate seems to be doing some sort of job, but I need a new shot every 4-5 weeks as platelets refuse to steady out. Not sure on my high level, but after 3 to 4 weeks I'm around 80, a week to 2 weeks later I'm anywhere around 10-20 platelets. So they are like a yo-yo!
Have people been having N plate for longer? I know it is meant to be used to maintain levels around 50.
Have people given up on N plate?
I just have the feeling I'm not really progressing and would like a nice maintained level so iI can get on with life, without the thought of low levels, or being tired or having a sodding rash every few weeks!!