Just a quick one (i hope!!) how long have people been having N plate injections? My situation is that after ITP showing its head again in September, I've been having N plate injections to control the level (had rituximab but failed after 3 years, and cant do steroids as body goes into melt down and give me steroid induced type 1 diabetes).
The N plate seems to be doing some sort of job, but I need a new shot every 4-5 weeks as platelets refuse to steady out. Not sure on my high level, but after 3 to 4 weeks I'm around 80, a week to 2 weeks later I'm anywhere around 10-20 platelets. So they are like a yo-yo!
Have people been having N plate for longer? I know it is meant to be used to maintain levels around 50.
Have people given up on N plate?
I just have the feeling I'm not really progressing and would like a nice maintained level so iI can get on with life, without the thought of low levels, or being tired or having a sodding rash every few weeks!!
Written by
Ironspur14
To view profiles and participate in discussions please or .
I have been receiving weekly nplate injections for 3 years and it's worked at keeping my levels at around 50-60. I have very few symptoms - just bruising and occasional nosebleeds. However just recently I have changed treatment to Revolade (eltrombopag) due to the inconvenience of weekly injections. I will have my first blood test after the changeover tomorrow, so watch this space to see the result! What level of nplate are you on? I was having 0.33 micromils weekly. I am surprised that you are having injections 4 or 5 weekly. Perhaps you should ask your consultant if it is possible for you to have a more frequent injection.
I have been having Romiplostin (N plate) injections for almost a year the affect of an injection normally lasts 3 weeks and I have the medication at home in the fridge and inject myself 250micrograms. I do require a blood test every 3 weeks and the levels are between 32 and 183 depending on who knows what! The injections are a bit of a nuisance when trying to plan holidays eltrombopag would be more convenient but unfortunately due to having another auto immune condition they are not suitable for me. Obviously I am not a medic but 0.33 per week does seem a little light perhaps you should query. Good luck.
Nplate was approved in 2008, I started injections in 2010 and require weekly injections to maintain my count at 50K. I can't servive without this medication.kyriak51
Nplate was approved in 2008, I started taking weekly injections in 2010, it's the only thing me alive. I don't understand why you are only receiving injections once every 4 to 5 weeks. You will achieve an adequate platelet count at that rate. Kyriak51
Had a blood test today, higher than I expected, count of 50, having a injection tomorrow because of my history and consultant is away for 2 weeks. Spoke about alternates, I have ruled out splenectomy, rituximab has failed once before, and tablet for of eltrombopag (I think) has lots of restrictions. Steroids are a no go also.
Consultant understood my concerns but is happy for time being with my progress. And having seen some of you having weekly shots, or being on it for a lot longer than me has made me realise I'm not doing as bad as I thought.
I hope you are all doing well, and thank you for your replies.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Newly diagnosed, some queries
