I'm Currently on N Plate, and have been told this if this doesn't work I will be having my spleen out, I have heard someone say that they have had their spleen which didn't do anything but then had their Tonsils out and it sorted their ITP out. As I have suffered with tonsillitis in the past just wonder if it would be the same for me.
Thanks
That's a first. Keep us informed.
No it's not!! See my response!
Having your spleen out is the last thing you need unless absolutely necessary. The success rate is circa 40% and removal takes an organ from your body which has a distinct function. Give N Plate time to work before you make any decision. If in doubt, have a second opinion from a ITP specialist. If your in the UK, there are 24 around the country, details on the ITP web site.
Hi. Same happened with me. My tonsils were thought to be the culprit after spleen removal was unsuccessful. I had terrible tonsillitis about five times a year and they were so swollen i was having sleep apnoea at night It was about four years after my splenectomy in my early twenties so they did a tonsillectomy. My count didn't change but I had far less Infections so overall my immune system was a little Healthier but I've posted before as you know about splenectomy.
Hello the splenectomy for me did not work.. I got the surgery back in 2007, after surgery yes my numbers went up but after like 2 weeks my platlets were back down again... It was a roller coaster ride I agree what sailor says get a second opinion about that splenectomy.... I was only given a 60% chance that it would work but it didn't what has worked for me is the IVIG my last hospitalization was back in Sept 2015 given IVIG.. Since then I have been doing great.. But I do monthly labs and see my hemotologist every 3-6 months. But good look and keep us posted....
Hello Nespinoza, thank you for getting in touch, did you have any ivig before your spleen was taken out? When I have ivig it is the only thing that brings my platelets up but it only lasts 2-3 weeks
Actually no I didnt I was given platlet transfusion because i was hemorrhaging...
Forgot to mention that when i was hemorrhaging of course the doc had to stop the bleeding before i went in to surgery. Once that was cleared i was given the platlets after my surgery i was told i was loosing blood which i had to have a blood transfusion...also just to let u kno i live in the united states and of course we are in different time zones....
please use papaya (fruit) 3 times a day .it is very helpul .i am using it
New thing
anyone know the odds of spleen removal ??
Anyone else on Mycophenolate with no spleen?
Is spleen removal a must if the platelets don't increase 
Doctor wants to take the spleen out if my counts gets to 120,000 I've been on nplate for 3months and my count hasn't been higher than 39
Does other people find different doctors completely contradict each other and confuse them?
