goodmorning, i'm from belgium.
my son Senne is almost 4 years old and was diagnosed with (doctors say acute) ITP last may. he is having a really hard time with it. tired, moodswings, lots and lots of bruising... 2 weeks ago, his platelets started rising and finally all is bruising was gone. but yesterday after is first day of school he was completely covered head to toe. (literally). In belgium there are no supports groups, almost nobody heard of it, even some of the nursing staff and dokters in hospital never heard of it.
As a mother i feel so helpless to see him suffer and there is really nothing i can do.
people don't seem to understand and some of them tell me that i ( and my husband) exaggerate. we are being silly.
but i can't help it, i'm exhausted, sad, and nobody seems to understand. i've tried to explain everything to them and what ITP is but it's not that simple.