Is there any treatment other than steroids

[Ineedachange]

Mu Mother suffering from itp. Age 46.taking steroids leading to lot of side effects. She had her splenectomy. But no effect. I wana to know any ayurvedic treatment available and to get rid of steroids.

[Hidden]

I am not sure of any ayurvedic treatments but there are definatetly many other treatments available including ivig, dapsone, rituxin, nplate, promacta, revolade ,cyclosporin, all of which can have side effects.Watch and wait is always a pan if there is on excessive bleeding

[Ineedachange in reply to Hidden]

We tried ivigs, revolade, danazol also. But want to know how t hav longterm efficasy

[Hidden in reply to Ineedachange]

Rituxin is the only thing that gives me re mission and that is up to 3 years at a time I Have had it 4 times now in 10 years

[Ineedachange in reply to Hidden]

Have you underwent splenctomy? Each time taking it that is you said 4times.each time you took how many does for how many months?

[Hidden in reply to Ineedachange]

Yes had my splenectomy in 2000 wish I hadnt. Each dose of rituxin is given weekly ( it takes a full day to ad inister to me) for 4 weeks my first round was also given with dexamethasone subsequent doses were considered maintenance and not as hig a dose. My first round gave me nearly 3 years remission 2nd gave me 3.2 years 3rd gave me 3.5 and I had my last dose in October 2014 and am still in remission

[palash199 in reply to Hidden]

Mumofwill how much does gives you 1st year.

[RobertSp]

I was in a similar situation several years ago. The drug book lists the side effects of steroids and I had them all! I sympathize with your situation. I encourage you to preserver. Doctors seem to suggest trying steroids first. Treatments like IVIG can help in conjunction with steroids but that can be dangerous and have side effects. Sorry to say I guess all possible treatments can have side effects. I eventually found a treatment that works for me. Hope you can find a similarly helpful treatment soon. I have been drug free for several years now.

[Ineedachange in reply to RobertSp]

So how did get reveal of these medication? Now what is your platelets count? Now are you using any medicine?

[RobertSp in reply to Ineedachange]

I am drug free at the moment and have been for about 7 years. My platelet counts stays above 30 and at that level I do not need medication. Aparently my platelets are more active than usual so fewer are required. There is a study published on the internet of all the drugs for ITP and their rate of effectiveness. (I suggest you try a Google search.) Each drug seems to work for some people but not all people.

[rharvin in reply to RobertSp]

Thats good to hear what medication are u on to maintain ur platelets

[scaryteacher]

Does she bleed and bruise a lot?

[Ineedachange in reply to scaryteacher]

Not a lot.. But slight bleed is thre

[scaryteacher in reply to Ineedachange]

What's her count? Some of us on here have ITP at fairly low counts, and we don't take medication at all.

[Ineedachange in reply to scaryteacher]

6000

[scaryteacher in reply to Ineedachange]

I know Sailor on here has no meds and has a count of about 10k. Does the count drop if she stops taking the steroids?

[Ineedachange in reply to scaryteacher]

Yeah dropping. That is the actual problem

[scaryteacher in reply to Ineedachange]

It isn't always, that's why I asked.

Is it a big drop when she stops, or the usual fluctuations? Mine can be <19k, and the docs send me off to A&E, where 4 hours later, they will be 29k.

I don't think anything other than the usual meds will help. If it did, we would all be doing it.

[Ineedachange in reply to scaryteacher]

If we are stopping steroid count fasting to 3k

[Rockette62]

I dont know of any natural remedies that help. I know people with ITP who have very strict diets, that do all sorts of "alternative" things, yoga, tai chi etc. While I think it can help mental health I dont see that it has helped their ITP.

[Swetal]

Try tab Dapsone.its a good drug with minimal side effects .

[supra29 in reply to Swetal]

Have u tried?

[Ethelbenny]

Yes she can try Nplate or another thrombopoieten

[Ineedachange in reply to Ethelbenny]

Revolade dint help. Nplate is it safe? What is the cost of nplate

[Padram]

Hi, ineedachange, I have found relief with homeo and papaya leaf extract. Where in India do you live?

[Ineedachange in reply to Padram]

Andhra pradesh. What is ur count? Where did you take homeopathy medicine

[Padram]

As of now my count is 150,000. My homeopath is in Banalore. There is a very good homeopath by name Dr. Bhaskar in Hyderabad. His email id is [e-mail]. You can contact him. Please mention that you got his mail id from a patient of Dr. Tejo.

All the best.

[Ineedachange in reply to Padram]

So you are taking medicine from hyderabad? Did you stop allopathy?

[palash199 in reply to Padram]

Sir I am live in Kolkata. Plze my email I'd is [e-mail]. plze send your mobile no

[Padram in reply to palash199]

Hi palash, I am padma. Please give more details about what you want, and who is suffering from ITP

[palash199 in reply to Padram]

My sister suffer from itp. His plats rate count very low. Plze send your mobile no.

[palash199 in reply to Padram]

CARIPILL TAB is ayurvedic.you can give this tab every day. Plze send your mobile no toll to you.

[Padram in reply to palash199]

Hi pal ash 199, I take CARIPILL twice a day. I have stopped homeo meds as we were not able to manage both ITP and Rheumatoid Arthritis together . At present am trying to control RA through diet. I take no medicine for RA as it affects my platelets. Please see a good homeopath in your place. I don't know any doc in your place.

[palash199 in reply to Padram]

My relative live in Hyderabad so I can go Hyderabad .

[Padram in reply to palash199]

Hi palash199, you can then see Dr. Bhaskar, whose email id and phone number I have already given . Please check all replies here. You will get it.

[palash199 in reply to Padram]

Hi padma can you tell me itp patient which process diet.

[palash199 in reply to Padram]

Hi padma which doc give you CARIPILL tab? Dr bhaskar. Plze tell me

[Padram in reply to palash199]

Hi palash199, Dr. Bhaskar is a homeopath. He will not prescribe ayurvedic drugs. Caripill was suggested by my GP. Caripill is generally used in patients with dengue. It is supposed to be taken only for 5 days. I am taking caripill under the supervision of my GP. Long term use without doctor's supervision is not correct. Please consult a good doctor. I stop caripill on and off, as per my GP's direction. No medicine is completely safe. So you can't self prescribe. Please see a homeopath in your city first.

[palash199 in reply to Padram]

Hi padma this word GP I do not understand.

[Padram in reply to palash199]

Hi,palash, it means General Practitioner. Your family doctor, or some doctor you regularly consult, can also prescribe this medicine. But I would sincerely advice you to consult some homeopath. There are so many in your city. DON'T SELF MEDICATE.

[Padram in reply to palash199]

And as for diet, nothing actually increases the count. ITP patients should take healthy diet, with fruits and vegetables. But there is no diet that will increase platelet. At least for me, nothing helped.

[palash199 in reply to Padram]

Hi padma tell me this time you can take any allopathy drug. Why do not take any homeo med for your itp?

[Padram in reply to palash199]

Hi palash, Caripill is a herbal drug. There is no chemical in that tablet. Only papaya leaf powder. I am not taking Homeo medicine now, from February 2016, because it doesn't help my Rheumatoid Arthritis ( RA). If I take medicine for platelet, my RA factor increases, and if I take Homeo medicine for RA, my platelet comes down. Allopathy drugs don't suit my 2 Auto immune disorders. My condition is complicated. Hope you got your answer. Since I can't take any medicine for RA, I have started trying to control RA by drinking vegetable juice, fruit juice, soups. I have stopped all other food for almost a month now. My joint pains have gone now. This too I am doing only under the supervision of my homeopath. But for ITP, there is no food that increases platelet. So I take Caripill which is made from papaya leaf.

[palash199 in reply to Padram]

Sir I am live in Kolkata. Plze my email I'd is [e-mail]. plze send your mobile no

[Padram]

My doctor is in Bangalore. I get my meds from there. I have stopped allopathy. My haematologist did not want me to try alternate medical treatment . So I stopped seeing him. It took some time to stabilise, but I am good now. ITP has no cure. We can only hope to manage this disorder. I feel very sorry for your mother. But don't lose hope. Do you live in Hyderabad? Dr. Bhaskar was suggested by my doctor when she was unavailable for some time. I also have Rheumatoid Arthritis . Dr. Bhaskar gave me some wonderful suggestions, and I am almost pain free without any allopathy drugs. Please do contact him.

All the best. Please feel free to ask me for any help

[Ineedachange in reply to Padram]

Thank you so much. So your count is maintining now only by homeopathy? Can you give me his address

[carmonacavite]

Can you please share what type of medication or any alternative taht you are taking. Thank you

[Padram in reply to carmonacavite]

Hello carmonacavite, at present I take CARIPILL tablets. It is made from papaya leaf extract. I also take homeo meds, as my RA has also to be managed. To improve my energy , I also take Ashwagandha tablet once a day. I have been following this regimen for a month now, and my count is steady at 1,50,000. Also my ESR, CRP and RA Factor have decreased. So I think I am on the right track.still a long way to go, but I am able to do so much now. The fatigue has almost disappeared. No side effects whatsoever. As for diet, I am vegetarian . Take a lot of fruits. Drink veg juices, buttermilk. Use sesame oil a lot. Hope this is helpful.

[Ineedachange]

Ayurvedic or homeopathy

[Padram]

I don't have the Doctor's address. I shall give you the phone number of his clinic. I am taking both papaya leaf extract and homeo meds. If I take only one, my count drops . I do not know the name of the medicine my homeo doctor gives. But it was her medicine that stopped my bleeding and increased my count. My problem is complicated because of Rheumatoid Arthritis .

Dr. Bhaskar's phone number : 040 27760670.

[Padram]

Hi, ineedachange, got the Dr. Bhaskar's mobile number too. 09849030984.

[Ineedachange in reply to Padram]

So his medicines you are using or u said some female doctor at banglore

[Padram]

I don't understand your confusion. I get my meds from Bangalore . I consulted Dr. Bhaskar when my doctor was not available. I don't get any med from Dr. Bhaskar. Since you live in AP, I. Gave his phone number.

[Ineedachange in reply to Padram]

OK.thank you

[palash199 in reply to Padram]

Sir I am live in Kolkata. Plze my email I'd is [e-mail]. plze send your mobile no padram