Just curious what has been your Doctor’s go to treatment/prognosis?
The hematologist I originally began seeing initially had me on 80 mg of steroids for about 4-5 weeks and once my platelets continued to fall tapered me off began doing a combination of IVG transfusion and platelet transfusion-both temporarily worked but my platelets began to slowly fall again. I’ve read both these treatments are “band aid” treatments. There was another extreme form of medicine he wanted me to begin taking (started with an R can’t remember full name) but my PcP advised not taking it.
To complicate matters further more, the hematologist said my ANA came back positive, and he said that was indicative of lupus and wanted me to see rheumatologist. Flip side, my PcP disagreed, saying i am not exhibiting any symptoms for lupus and when he ran another ana blood work, he said it came back “perfectly normal.”
Obviously, I am currently seeking a second opinion but just curious if those with ITP have had equally if not more frustrating experiences like I have. Also, has anyone been given like a “long term treatment regiment” and has that seemed to help your itp condition?