My wife has been diagnosed with TTP 4 months back

[ManishTTP]

My wife recently got affected with TTP.

Brief background - My wife was pregnant 2 yrs back. She had developted Thyrod durring pregnancy and thyrod was normal after pregency. However, since last 45 days , she was feeling very weak. On 28th Jan 15 morning, she felt stiffness on her left hand and head for 1 minute. Same day evening, she got similar feeling on her right hand and head. This was something like paralytic attack. We immediately rushed to our family doctor. He adviced blood tests. In the tests,we saw her hemoglobin was 5.80 and Platelete were around 30,000 only.

Our doctor informed us to consult a Hemotologist asap and we went to Dr M B Agarwal - Best Hemotologist in India.

She compeleted 5 cycles of plasma exchange and 4 doses of reditux injections (by Doctor Reddy) and got discharged on 3rd Feb. However, she got a re-attack in 10 days after discharge from hospital. She underwent further 5 cycles of plasma exchange. The last plasma exchange was done on 28th Feb 2015.

While Dr MBA is the Best,request your help in getting any additional information on any alternate treatement possible for treating TTP / precautions to be taken etc.

It will be great to get contact details of any person who was by affected by TTP and is currently out of it. We can get suggession from such persons...to prevent a re-attack.

I can also do a concall with you to discuss further, if required.

In case of any further information required from my end , please feel free to call me at 98193 57778.

/ [e-mail]

Regards

Manish Sanghavi