Severe neuropathy after induced coma

[Misterpaulwood]

After respitory failure in December 2022 I was placed in a induced coma for eight weeks.I am now left with perinial nerve damage causing severe pain in both legs and right quadricep, and complete numbness from the knees down, I've been on Gabapentin since coming out of the coma but the pain is still as bad.

My muscles are slowly getting stronger and I can walk a few steps.

Will this improve?

Are there other medications that are working for other people?

[Sepsur]

nerve damage ( if repairable) mends at 1mm a day - so yes it can get better - mine has in part and other bits haven’t. I’ve not tried any meds but exercise always helps ( even light)

[TaIaV]

Hello Paul, I have minor neuropathy in my foot and, after several years, I have tried acupuncture. I have had only two treatments so far, but it seems to be working as the numbness and tingling have diminished a lot. The doctor said that it will take some time because the condition has been there for so long. You may wish to try this. I hope that you find some relief.

[Misterpaulwood in reply to TaIaV]

Thanks for the advice I will ask my phisio if this is available on the NHS

[Misterpaulwood in reply to TaIaV]

on blood thinners after clots to my lungs so acupuncture is out of the question at the moment, perhaps in the future..

[FamilyHistorian]

as with the others. You’re lucky to be on gabapentin. But be aware it is addictive and is something you can’t just stop taking

[Misterpaulwood in reply to FamilyHistorian]

might be changing me to pregabalin now? wait and see i suppose.... it may apparently be better for this nerve damage.

[Misterpaulwood in reply to FamilyHistorian]

Now up to 1800mg of gabapentin and the pain is improving, slowly.

[Jjones210519]

Hiya! Like you I was also in a coma for 8 weeks. I have severe nerve damage in my left leg ( from groin to foot) that is vvvv slowly coming back, I have patches of my leg which feels normal now. I have mild nerve damage on my right outer thigh, that hasn't got any better yet. I also have severe ulnar neuropathy in both elbows causing my hands to be numb, my right hand has shown some improvement but not my left. This was january this year.

[Misterpaulwood in reply to Jjones210519]

It's a slow battle, nerve pain is a bitch...

[Jjones210519 in reply to Misterpaulwood]

And painful. The 1800mg gabepentin just isn't cutting it 😂😂

[Misterpaulwood in reply to Jjones210519]

It takes the edge off.....