I love this group esp as some of you are going through what we are going through and some of you great people have come through on the winning side!
So dad's sedation is being lowered and we got out first smile and some response on Saturday. We did all get very excited and started to ask him to blink and try mouth words. When my son tried to speak i think he got emotional and he saturation fell. So Nurse advised us to let him rest and that dad was getting emotional.
After all these weeks and no response this was amazing!
They say hes stable on 50 % oxygen (was on 45%) peep around 7 and pressure still quite high (consultants at this hospital don't give us numbers!). They have stopped the steroid and now extending the antibiotic.
Nurse said he was the best she has seen since the transfer in terms of response and stability which was nice to hear. Obviously we never hear this from any doctors, but we did get 'for someone so sick he is not doing too badly. Numbers are bad but for critical ill its ok?!'
I desperately want my dad to turn that corner and pushing for weaning. They say they are focusing this week on reducing the sedation. He is off the Propofol and put on another which is more a relaxant.
After nearly 3 weeks on the Trach, I want to hear some progress or that he can have the valve to speak to us or something. I'm desperate not to hear word 'static' as I know the longer he is on the vent the weaker he will be.
I just feel so on edge, emotional and worried what he may e feeling now he's semi conscious. He will prob feel so isolated and alone it breaks my heart.
Not sure why I am writing this but I know this group gives me a lot of strength.
I'm looking forward to the ICU steps call this eve too.
Lots of love and strength to you all.