Roller coaster

[Pandysgirls]

I’ve posted on here a few days ago but didn’t really go into my story , but now I’m feeling broken and feel I need to put it out there and try to unburden a little . My husband went into hospital on 7th April with breathing difficulties ( Covid ) . He was put on ventilator more or less straight away . First weekend he was at crises point , kidneys liver , clotting , blood pressure ., I don’t know how we got through that that once a day call is killing . A few stunts on kidney filter , anti biotics for a temp , and by weekend 2 they fitted a trachy . We thought we was on the way , then we had a late call from consultant my husband had burst a lung . They put in chest drains and yet again we waited .... daily reports seemed a bit better until the next bombshell he had a temperature again and they found he had a heart infection ! So they put a line in to deliver antibiotics to source told us it’s a long course and we waited again . Then good news chest drain came out earlier than we thought , and the next day they had to put another one in . Then last week when I first came to this site we found out he’d had a stroke . To be honest they didn’t seem as concerned about that as they was his lungs . Good points he hasn’t really been on sedation for a couple of weeks , other than putting in chest drains . He has been doing his own breathing and just being backed up by ventilator . He is awake but not sure of his level of understanding yet . I’ve had a video call which I’m thankful for as I hadn’t seen him for over 4 weeks . And this week he’d had time of the vent , a bit of physio and yet again we thought we was on the way .... yesterday’s update they think the stroke is worse than was thought still on blood thinners which they hope will help , they do think even though slowly his internal organs starting to heal , but I find it hard now to see or believe any positives and then I read some of your stories and I’m embarrassed and ashamed that I’m not thankful for how far I’ve come . I wish everyone going through this your own little miracles or to turn the corner on your own journeys , and I’m just going to keep praying I get my husband home and off this awfull roller coaster .

[Sepsur]

I wouldn’t feel remotely embarrassed about how you are feeling about it all - you and your husband have been through the wringer alright.

When you see/hear what the body goes through on occasion and the person survives is truly miraculous.

When I eventually woke - so many of the NHS staff would come in calling me the miracle and that at one stage I was the sickest person in the hospital. Your poor husband sounds like he might clinch that title.

I wish I could tell you that the roller coaster stops immediately - from my family’s perspective - critical care is just the beginning of a very long journey of rehab. Be prepared for the long haul / you have to build up your reserves and look after yourself.

[Pandysgirls in reply to Sepsur]

Thank you so much , even just for reading my post , just hoping with everything I’ve got x

[Videodragons in reply to Pandysgirls]

I had a similar experience to Sepsur's. The staff were congratulating me rather than vice versa. One young doctor sat on my bed just before I was discharged and, with tears in his eyes, said that my case had reminded him why he had become a doctor. Don't give up - the medics are fighting for your husband.

[Pandysgirls in reply to Videodragons]

Thank you so much x

[HopefulA]

You guys have been through so much, sending hugs x

[Pandysgirls in reply to HopefulA]

Thank you so much hopefulA , hows dad doing ? Sending you hugs xxx

[HopefulA in reply to Pandysgirls]

He seems stable although they are doing a CT of the brain today so praying it doesn't show up any concerns🤞🏼🙏🏽.

Nurse tells me his temperature is slightly elevated at 37.6, again I'm praying this doesn't become an issue xxx

[Pandysgirls in reply to HopefulA]

Sending you prayers and hugs xxx

[PeterDoc]

Do not need to feel ashamed or embarrassed at all. When you’re going through something as traumatic as this, made worse by the fact you can’t be at the bedside, and getting one, maybe two calls a day with updates, you feel you are the only one going through it. I was the same 5 and half years ago, when my wife almost died, but I was lucky, as I could sit by her bedside for 12hrs a day, and have any questions I had answered there and then. Stay strong and I’m sure there’s lots on here 🙏🙏🙏🙏 for you and your husband 🤞🤞🤞🤞

[Pandysgirls in reply to PeterDoc]

Thank you for kind words and prayers x

[PeterDoc in reply to Pandysgirls]

More than welcome, know what’s it like in a way, but as I said, I had the added comfort of being at the bedside and able to ask as many questions as I wanted. I feel so much for all those that can’t be there due to this virus x

[Mccarthy0702]

It’s such a rollercoaster, even when it’s good news I feel myself just waiting for something else to get in the way.

My dads had two chest drains in this week and still in place , things are looking better infection markers down etc and today talk of weaning off ventilator. My dad is now very much awake and aware and mentally he’s getting there .

He looks well on outside and so much better just scary what’s going on inside he also has a large clot in his jugular vein. I am just taking every day he’s well as a positive just to scared to forward think that’s all we can do . He’s fought this long and sure he’s a fighter he will get there xx

[Pandysgirls in reply to Mccarthy0702]

Thank you for sharing with me hope your dad makes a speedy recovery now , praying 🙏🏼🙏🏼🙏🏼🙏🏼And sending hugs x

[Avaco in reply to Mccarthy0702]

Good to hear McCarthy0702 so encouraging and positivity may god give him long healthy life

Just wondering how long he was in vent and how long it takes to come out from sedation effect? how he is coping after coming out of the vent like muscle wasting, movement etc

[Mccarthy0702 in reply to Avaco]

He’s awake and been off sedation for 11 days but still on ventilator with tracheotomy.

He’s being slowly weaned as he’s had such a long time on ventilator and a lot of muscle waste. Just last week wasn’t even able to lift his arm off the bed.

He is now giving us a little wave on video call.

I am so hoping and praying that this is his road to recovery .

Thank you

[avnipiro]

Sending you hugs

[Pandysgirls in reply to avnipiro]

And to you , I think we all need a group hug I pray for everyone going through this 🙏🙏🙏x

[Marcita]

You are entitled to feel the way you want/need.

Hugs!