APS Question

[Cecethat]

I was diagnosed with APS 4 years ago. Due to memory loss, I forget a lot. But, does anyone get rashes with APS in the sun or are sensitive to the sun?

[Fra22-57]

the rash I get but just get that anytime is a lacy rash called livedo reticularis.Is it like that

[Cecethat in reply to Fra22-57]

Not sure. I will look it up to see what that is.

[HollyHeski Administrator]

I get the rashes not necessarily from the sun. I also have sjogrens which causes skin issues especially dryness. And to top it all I am on Hydroxychloroquine which also causes changed to sensitivity to sun.When I was young I could tolerate many hours in the sun and would have a lovely tan - now I cover up and wear sun screen all the time, even on dull days I can burn.

To answer your question it could be one or numerous reasons why but yes rashes and sensitivity are very common..

[Cecethat in reply to HollyHeski]

Thank you!

[GinaD]

Lupus is a close cousin of APS. For years...YEARS!... I would get a rash following sun exposure. In hind sight, given my other symptoms, I probably had lupus. But as I have aged, the sun exposure rashes went away. In fact, I had forgotten this plague until reading your post this morning. What happened? Age? Going on a gluten free diet? Those steroids I took back in 1980? ??? I'm just thankful that the rashes, the migraines, the swolen lymph nodes are all gone! Normal! I love being normal!

[Cecethat in reply to GinaD]

Yes! That Iis definitely the goal!

[Jenne1961]

My skin burns from the inside. Not since I found coolibar.com clothes.

[PepperT]

I have APS and get terrible rashes in strong sunlight (raised lumps, itching and stabbing) Not so much in the UK but only because we don't get the intensity of UV, but if I go abroad I start taking antihistamines 10 days before I go and continue while I'm away, I also use factor 50spf because if I burn no amount of antihistamines will control it.

[KellyInTexas Administrator]

could be SCLE, one of the four sub sets of lupus that is the mildest, and affects primarily the skin. Take a photo and show your rheumatologist . Be sure to note the conditions when it happens . ( typically it occurs in sunlight.)

[Cecethat in reply to KellyInTexas]

Oh no. It is definitely not that. Like eczema almost.

[KD2605]

Hi atleast I have not noticed till now,

[jagessar]

I was diagnosed with APS twenty years ago .I have not been aware of any related rashes.

[Bloodredroses]

you can get everything odd with APS as it’s an autoimmune condition. The immune CONTROLS every single function and organ of body . I find as a woman, plus blood thinner to stop blood clot . Dry vagina , nauseous stomach sensitive skin. Close to skin surface blood seep spots. ( due Rivaroxaban . Sort of rashes. Dry eyes. Dry skin . Sensitive gums . Pins needles in toes. Sinus hayfever Arthritis flare ups . On and on you just treat each individual condition . Have a huge cupboard and many plastic storage boxes for medicines 😂😂 vitamins and supplements plus the medical garments , splints etc for individual parts of body. Anybody else have odd weird APS or Rivaroxaban symptoms. It’s endless I find, otherwise I feel healthy haha That’s why there is this global APS group . 👋👋

[Cecethat in reply to Bloodredroses]

This would be me!